Hi Ladies me again with more to the saga , so after getting onc to give me cisplatin sadly after my first infusion my ca has now gone from 506 to 950 😰 I am feeling very disillusioned this evening, oncology nurses are so very kind telling me not to give up that they will find something else, my onc has said today to carry on with cisplatin as the scan which was read On 25/10 is stable, how was cisplatin for you ladies ????
Loren x
Hi Loren I haven't been on Cisplatin so cant advise on that particular treatment, I have however been on Caelyx/carbo mix and after my first infusion my CA125 rose by 300 points, I was gutted but a nurse told me it was quite common and to persevere, I did and am happy to say my CA125 has come down significantly after 4 infusions. Good Luck x
Thankyou Lyn, so happy that caelyx/ carbo is doing the trick for you , I'm praying that cisplatin might just work better after the second infusion, I also have ascities build up so back to oncology ward on Monday to see about draining
Take care
Loren x
Hi Loren,
Received 3 rounds of Cisplatin along with Carbo/Taxol and then the Cisplatin was stopped after a hearing loss was detected (Avastin was added instead). My CA125 came down slowly. I was hospitalized for the infusions and received a hearing test each time (after a baseline was recorded). I am grateful the doctors monitored this possible side effect with Cisplatin.
I find the oncology nurses to be so knowledgeable and our biggest supporters so stay positive!
I had it a few years ago. It is carboplatin's older harsher sister! Nausea was a big issue but it can be an effective drug so I wouldn't write it off. All the best with everything.
Thankyou for your reply, it is great to hear from someone who has had cisplatin so fingers crossed the second infusion has done its job
Take care
Loren x
I had Cisplatin for 2nd line treatment didn’t have a ca125 test during treatment as it didn’t increase from 13 with recurrence. I had a ct scan post treatment and only a small nodule could be seen on the scan. I am currently stable.
Ellsey xx
Thankyou Ellsey , that's positive news, I've got my fingers crossed that it will work for me also....
Hoping you stay good for a long time
Loren x
Cisplatin worked for me. Was included in front line. Put me in remission for nearly 2 years.
Thankyou Tesla , hoping that they will drain the Ascites then give the cisplatin a fighting chance
Hope you are well
Loren x
Hope they will drain the ascites. It’s very uncomfortable and you feel better as soon as the drain it
RISE IN CA 125 
CA 125 high but stable
Awaiting CA 125 results
Update rising Ca125 on Niraparib
