The advantage of blogging, you can have a moan or a fret and then close the door on it, or when you are feeling good put it on paper and smile. Today is a rant day, there seems to be so many of them lately, following the pelvic infection and two courses of antibiotics and the boil in the wound infection and course number three of antibiotics, it was off to the doctor today with a pinky discharge which I've kind of ignored because I'm all doctored out but it got a little worse, not loads but a drip here n there had become a couple of drips here and there. My lady GP has gone, of course why wouldn't she just as she saved my life sending me for a scan and I haven't had the chance to say thank you, so it's the slightly older possibly eccentric GP waiting for me.
Hop on the couch and lets have a look, so its speculum time, her face kind of contorted and she came at me with a giant Q tip, ouchy, she didn't like the look of my leaky internal wound and thought it may be an infection (is there anywhere left to be infected?) although slightly worrying when she mentioned leaky from the uterus? It's in the path lab or maybe even the bin by now, but wherever it is I know I don't have it. So it's antibiotics course number four, she even asked which ones I fancied this time???? For five days to take me to my consultant appointment next week, seemed reasonable enough, and was told go straight back if it gets worse.
I get home, hubby then pops in from training before going off to deliver a course and I'm having a kitten convinced I'm going to be carted off to hospital to be restitched I thought he laughed but I can't swear to it, he did hug me. Made me a cuppa and the phone rang, it's the oncology department they are cancelling my appointment for Tuesday as clinic won't be on, hubby has cancelled a days work to come with me the money is not recoverable, now he has had to cancel for the following week which is more lost money. Can't face it on my own, there will be four consultants the nurse from the chemo suite and the oncolgy nurse, if the bloods are okay may even start chemo that day, which wil do me a favour time wise, as now I've decided to go for it (possibly without taxol) I want to get it done, a bit like going to the dentist.
I hope all six won't be peering at my internal stitches, one raised eyebrow and I'll probably faint.
The upside, I drove to the surgery, bit surprised at the stomach muscles complaining but oh so nice, although I did still feel a little light headed, and it was freezing cold, so I shaved my legs for nothing, I was wrapped up like a polar bear.
Of course the possitivity for chemo had to come from somewhere I can almost quote every chemo drug and which ones are used together, because of my anti-Taxol stance, I read a report from October this year that gave the different combi options, but it did say that carboplatin/taxol is still considered the best even though they have been using it for more than 15 years. Taxol does have long term side effects, but more worrying stage 1 OC clear cell should be treated as if it was OC advanced because it's difficult to treat which is why they do full surgery and then full hit chemo, so will in the end be guided once I have discussed my worries, I do wish that they had told me this little gem rather than let me find out. I appreciate that my oncologist didn't want a menopausal wreck out cold at his feet but ti might have helped with my dilema. Now this delay has me worrying about Gremlins, what if this delay gives them the chance to creep in to the bits they can't do anything about.
So tonight it's a very large glass of wine, and I shall start the anti-b's tomorrow. Cheers all
LA xx
Impact of OC on lungs / AVASTIN / Dealing with pain
Allergy to Taxol
CA125.......JUST KEEPS ON RISING!!!
