I was referred for an ultrasound following a visit to my GP for increasingly heavy and very painful periods. I'm 34 and have two children. It was an urgent referral as she could feel a mass in my pelvis. Ultrasound showed a bi-locular mass with septa on my left ovary about 6cm, and an enlarged 'bulky and solid' right ovary. I'm due to have a CA125 blood test next week but it could be falsely elevated due to endometriosis. Appointment to see gynae is scheduled for the new year. Should I be worried???
Thanks,
Nicky
Written by
NicolaC
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Of course you will worry, it is no use anyone telling you not to. In my case I went into complete denial so when I was diagnosed it came as a massive blow. However I can empathise totally with how you must be feeling. It is very scary and hard to deal with. Although friends and family can be supportive it is impossible for them to understand.
Hopefully your diagnosis will be different and the problem will be able to be dealt with quickly.
I am four months out of chemo now and feeling really good. I am getting back to my old self.
If I have one message, it is that whatever the outcome, you will be in the very best of hands with a mass of expertise to help you through. Keep positive! It isn't always easy but it is the best weapon you have.
Sorry to hear you re going through such a worrying time. Is there any way you can ring up the specialist's secretary to ask for an earlier appointment? There's no harm in asking and it may alleviate your worries more quickly. It will be such a worry for you over Christmas. I had OC 8 years ago, I'd had endometriosis and fibroids, with exceptionally heavy periods. However, I was 52 and beginning to go through the menopause. Mine was diagnosed via a scan. I then had a trans-vaginal scan and a CA125, followed by a gynae appointment a couple of weeks later. However, it sounds as if you have been seen early and there are probably other things that may be causing your symptoms. Good Luck and let me know how it's going
You sound just like me i was getting pains in my right side went for ultrasound found cyst so i was sent to see consultant as emergency go back to your doc and ask to be referred as quick as possible my CA 125 was misleading they are not always accurate im stage 1c. Dont know were abouts you are but i went to Kingsmill Hospital But do chase them up you can get in quicker than that
Hi, and thanks for your responses, I have really valued the support that you have shown me, and I've been touched by your stories.
I thought I'd give you a quick update...The CA125 came back as 40, only slightly raised, and having seen a consultant I'm waiting for my operation date to remove the cysts. Had a worrying few days as I had my period and was fine, but then suddenly I was in agony, which caused my husband to call NHS Direct who promptly sent an ambulance. After a couple of doses of morphine I'm back home, but feel pretty miserable after the A and E Doc made me feel like an attention seeking junkie (This is at the same hospital that told me last time I went, a few years ago, that I'd had a miscarriage. I went on to find out a few weeks later that I was in fact, still pregnant!) Tried to explain to him that I had endo and cysts but he was so dismissive and patronising, I gave up and was glad to get out! Luckily I'm being treated at a different hospital.
I hope you all had a lovely christmas, and have had a good start to the new year xxx
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