ovarian recurrence stage 4b

[Pianoanddisco]

Hi beautiful ladies, I hope everyone is doing great.

Sorry I think I may had posted this already…has anyone gone through their first recurrence with carbo/taxol but with avastin added. I’ve read that some had carbo caelyx for their first recurrences. I was given a choice because I tolerated the carbo/taxol considering the common side effects I had which were nausea, low appetite, tiredness, low hemoglobin and loss of hair was devastating but Not to say these are a walk in the park side effects but I think I was ok with carbo/taxol.

Forgot to mention, a bit of neuropathy in my hands and toes but the hands resolved after my 2 or 3 cycle but my toes have not but I hardly feel it’s there. This time they say they will lower the dosage because of that.

please share your thoughts or experiences.

Thanks

Peg

[CFVD]

Hello Pianoanddisco,

My wife had her first recurrance in June this year and is currently on Carbo/Caelyx and Avastin. She’s on the Gloriosa trial in the UK, which is why she ca have Avastin for recurrance in addition to the chemo. She was not offered Taxol.

She is tolerating it well with varying side effects. She’s chosen to wear the cold cap when she has the Carbo/Caelyx to help prevent hair loss, and it’s working well.

All the very best to you.

[Sue-333]

I had carbo/caelyx for my last recurrence (10 Years ago) took longer than previous treatments, 6 months rather than 4 because had it every 4 weeks. Tolerated it well but of course side effects. Very sensitive and dry skin, fatigue and the usual nausea, managed with 2 types of anti sickness meds. I didn't lose my hair or suffer much, if any neuropathy. Dose was lowered after a few cycles because it was impacting my white cells more than expected. It did seem to take longer to recover from than previous treatments but it seems it Was worth it! Wishing you all the very best with it, just take care of your skin. I was more sensitive to the sun, skin was drier and staying too long in shower with it on my back left me with little scabs where hard shower broke the skin x

[Pianoanddisco in reply to Sue-333]

Thanks Sue-333 for sharing your experiences

[Pawpaw22]

I have not had a recurrence. I did ot tolerate Olaparib which went with Avastin. When the onc team suggested I go off Olaparib, there was no point in taking the Avastin.

I do wish you luck with the neuropathy and would not ignore it. Sometimes I feel as if I have sand in my shoes. Other times there are very sharp nano-second pains. Nothing can be done for this. I find relief from massaging with various "potions" from my local market - I smell like eucayptus and camphor most times! But it gives me some relief.