Hi ladies , went to see lady surgeon yesterday at st Mary’s in Manchester, and I’m booked in for surgery on Tuesday. I’m a nervous wreck at the moment . She said this is my best chance of getting a good outcome . This will be followed by three more lots of chemo four weeks after the op . She said some ladies choose not to have the surgery and just keep going with the chemo, but it was my decision. Any advise please . Thank you x
Help . Surgery: Hi ladies , went to see lady... - My Ovacome
Chin up, lovely! This is going to be tough as Rachael47 wrote but it will offer you bigger rewards if you can find the strength and energy to go through it. But there will be moments of joy too so try to look out for them. I remember prior to one of my ops the anaesthetist made me a spectacle case out of a paper kidney dish, which took my mind off what was about to happen. When I woke up there were my specs safe and sound in the best spectacle case I've ever had. You will be so chuffed with yourself once you're out the other side! Go for it, girl! Gx
Hi. I was PETRIFIED of the surgery. But was out of hospital within 4 days. It was nowhere near as bad as I thought it would be. I believe it's the fear of the unknown which is the worst thing. Pain relief is available, but to be honest it wasn't that bad? Bet you felt so apprehensive before chemo? Was it as bad as you thought the process would be? This is coming from me the biggest wimp you will ever meet and if I can get through it you can too xx. Chin up, or in my case 'chinS'. Sending you a big hug. Kathy xx
I'm three weeks today post de-bulking surgery. I spent the first night in ITU just to be monitored and four nights on a ward. I'm now feeling great! Have been out walking this morning, baked scones and dropped the children to school. I too was scared stiff (even though I'm a nurse) but pace yourself, listen to your body and I'm sure you'll do really well. Take care xx
I am sure I'm only here today because of the skill of the surgeons as, once I had the recurrence, I was told chemos would not kill is, only getting out all the cancer cells. And if they couldn't get every 'last little sod' (my words not theirs!) out then it would buy me a lot more time. I'm now five years since surgery and I was told about 12 months ago that the longest remission known for clear cell is 36months....I'm 58 since finishing the post surgery chemo, so our fingers are twisted into crosses!
For nerves, I packed my 'hospital survival kit' (usual I-pad, ear-phones, books etc. plus eye-mask and ear plugs. I should have taken a peg for my nose too!
Warmest good luck,
Just to wish you best of luck with the surgery - it’s not the nicest thing I’ve had done but you do recover - just go at own pace and ask for pain relief if you need it - tbh I wasn’t in that much pain post op so had to fob them off by having paracetamol as they were determined to ply me with meds! Don’t lift and hold a cushion over tummy when you cough - and keep on top of bowels as you don’t want to be straining x
It took me longer to recover from the operation because I developed sepsis and had to go back into surgery . This is a rare complication but I mention it to make the point we are all different so try not to have firm expectations of recovery time. Everyone gets better at their own pace and it will take as long as it takes.
I am now 3 1/2 years on feeling well and loving life. Even though it was not straight forward for me I am glad I did it and would make the same decision again.
All the very best.
Thank you Fay , I’ve packed my ear plugs and eye mask , I know how noisy it is at night on the ward , can never get any sleep.i was reading some of your post about the doctors being so reluctant to give information out., like your not meant to know about yourself , why are they like that , every question is answered with , well everyone is different, or we don’t know . Very frustrating x
So not Christie's? Wonder if she is Greek with an impossible name to pronounce, maybe she covers st Mary's as well ?If so she is lovely and the same lady I had just under two years ago now.... be assured she will look after you and done very best for you...
Just take it very easy and let others wait on you
All the best janet x
Hi Machesterlady. My advice is to have the surgery. It's still the most effective treatment for OC, as far as I know. So I'd always choose surgery, if it is available. In fact, I had two of them so far (both times the big laparotomy i.e. 30 cm long cut). Both times all of the visible tumours could be removed, which makes it much easier for a chemo to mop up.
The first 48 hrs are a bit annoying, with the tubes and whatnot, and then it gets better rapidly. Just ask for pain relief when you need it (mine was never too bad) and try to be good to your bowels e.g. peppermint tea for wind, some careful moving around the ward and drinking sufficiently to get the bowels moving again after surgery. The rolled towel trick is very useful too.
I know you are terrified of the surgery.. so was I. But look at how far you've come since your diagnosis. Nowadays, you provide support and advice to others, and you have made it through several chemo treatments etc. Well done! Xx. Maus
I had a huge 7- hour surgery. I had complications and was very weak but was still up and about in a week and left hospital after 12 days. I didn't have much pain and didn't use the painkillers they gave me to take home. The long incision healed well and faded surprisingly quickly. I lost weight after surgery but apparently this is normal. My worst problem was anxiety in the first months after the op and I went fir counselling at the Macmillan centre. I think it just got better as I got stronger and my confidence started to return. One thing that helped me a lot was visits by the palliative care physiotherapist- she gave me some incredibly simple exercises to do to strengthen the muscles after surgery - this helped much more than I had expected and cured the back pain that was quite bad.
Wishing you all the best and yes the waiting around is the worst bit. I find anaesthetics are really weird as you go to sleep and wake up as if no time has passed! I was lucky to be on a ward that had individual rooms with En suite and only in for two nights. Only given paracetamol and ibuprofen but it wasn’t really needed just a bit sore trying to sit up so get your arms ready for taking the strain! I felt better knowing they had removed as much of the beast as possible so the chemo didn’t have as much to deal with. I did have some issues with wound healing but got there in the end. You will be well looked after I am sure and look forward to hearing that it wasn’t so bad! Take care and sending love and hugs xxx Jane
Good luck for Tuesday. You've had some good advice here, I'd just add not to forget to take the chargers for your gadgets.
If you're awake in the middle of the night, as is often the case in hospitals, and your friends / family are fast asleep, you can post here, as our Oz and NZ friends are awake and doubtless will keep you company.
Follow the advice of your nurses. If they think it's time you got out of bed and sit in the chair, then do your best to do so. Likewise when they suggest you walk to the shower, etc. Walking really does help. Oh, and doubtless you will have injections every day to help prevent blood clots because you're more immobile than normal. Watch carefully how the nurses do this as you will likely be given a supply to take home. I failed to watch and hadn't much of a clue had to do it. Mine were into the thigh.
All the best!
Hi Marylondon , had a major meltdown this morning . Told I’d be waiting for 6 hours. Saw surgeon and anesthetise. Down th theatre at twelve back on ward by four . Surgeon can’t to see me and said she had only seen three cases where the chemo hat hah such a goof response as I had . No sign of disease anywher. And she had a good rummage around . Still have 3chemos left though . Will see how I cope tomorrow. Thank you . Sorry for the errors . Morphine brain xx