DDS query: hi all, I asked a few days ago if... - My Ovacome

My Ovacome

18,239 members20,373 posts

DDS query

Beaver54 profile image
12 Replies

hi all,

I asked a few days ago if anyone knew what DDS was. No one seemed to know, not even McMillan. I finally got an answer from oncologist secretary (oncologist on holiday). Turns out it’s delayed debulking surgery. Wasn’t eligible for IDS. So there’s still a possibility of surgery if disease has shrunk significantly after my 6th cycle, which is on the 22nd. Scan on 25th. Feel a bit better thst surgery hasn’t been ruled out altogether.

Bev x

Written by
Beaver54 profile image
Beaver54
To view profiles and participate in discussions please or .
Read more about...
12 Replies
PippaRory profile image
PippaRory

Hi there, I was diagnosed with 4b ovarian cancer in December 22 and disease was found in both lobes of my liver and lymph nodes. Surgeon and oncologist ruled out debulking surgery. But after 3 rounds of chemo there had been good response and after 5 rounds they agreed to surgery...so I had DDS 10 days before my son's wedding...and managed to attend wedding in wheelchair, surgical stocking and wig! I should say my oncologist was lukewarm about the op though. He's putting his faith in Olaparib, which I started yesterday. Good luck either your scan, I hope it's good news!

Beaver54 profile image
Beaver54 in reply toPippaRory

Hi PippaRory. Thank you so much for taking the time to reply and I’m sorry that you’ve been, and are going this awful time with OC. Good luck with Olaparib, i hope that you get good results from it. I know that’s on the cards for me at some point. It sounds like you recovered well from surgery. Fantastic that you managed your son’s wedding too. Hope you had a fabulous day. Why was your surgeon lukewarm about surgery and did you achieve NED? Wishing you well for the future.

Bev x

PippaRory profile image
PippaRory in reply toBeaver54

Hi there, interesting reading Towergirl's reply, my oncologist said the same, surgery couldn't remove all cancer but olaparib will keep those cells at bay with or without surgery. The surgeons were much more enthusiastic and thry persuaded me to go ahead. I was fortunate that surgery went well, no complications. I was NED and my ca 125 remains low and stable. People seem very enthusiastic about olaparib so fingers crossed! Hope your decision is straightforward.

Beaver54 profile image
Beaver54 in reply toPippaRory

hi. Looks like I might have some big decisions to make. How do we know which way to go? I guess all we can do is put our trust in our teams. Brilliant that you’re NED after surgery PippaRory. The decision was right for you 🙂 Long may it continue x

Towergirl profile image
Towergirl

hi Beaver54, I’ve been in the same position as you this year. Mine was my first recurrence in liver and around spleen. I was offered debunk surgery and splenectomy but surgeon I saw wasn’t giving me confidence at a 10 hour operation with risks. My oncologist wasn’t keen as he didn’t think al would be removed and as caught early plus I responded to chemo well. I’m now 75 and rejected surgery 6 cycles of chemotherapy now on Olaparib 3rd month (BRACA2).

Waiting for CT scan results (Tues) to see if tablets working. Chemotherapy was NED in liver but very small left on spleen.

Hoping Olaparib works for us both hugs xx

Beaver54 profile image
Beaver54 in reply toTowergirl

Hi Towergirl.. thank you for your reply. It’s a minefield that’s for sure and nothing is straightforward. I’ve just got to be patient and wait to see what the scan reveals. Good luck for Tuesday 🙏🏻I hope results are positive. It sounds like your decision was right for you too. I guess I’ll know when the time comes for me to make a decision. I will probably go down the second opinion route as well. Hugs back 🤗 xx

JustKBO profile image
JustKBO

Fingers crossed for you. Good luck.

Beaver54 profile image
Beaver54 in reply toJustKBO

Thank you x

Summergold2 profile image
Summergold2

that’s good news that surgery isn’t out completely

Beaver54 profile image
Beaver54 in reply toSummergold2

Thank you. I hope not anywsy 🤞 x

Summergold2 profile image
Summergold2

keep us up dated!

Beaver54 profile image
Beaver54 in reply toSummergold2

I will . Thank you x

Not what you're looking for?

You may also like...

DDS treatment.

Hi. I saw my oncologist a few dsys ago for the result of my scan which was done after three rounds...
Beaver54 profile image

Avastin query

Hi there, I have stage 3c high grade epithelial. Had surgery 7 weeks ago debulking. Due to start...
Helvelyn profile image

Travel insurance query

Dear All We have had a query via the support line which I hope you can help with. One of our...
OvacomeSupport profile image
Partner

Para Aortic LN Surgery Update & Question

Thought it was time I should give update on my surgery since I had great support and advice from...
ruthg55 profile image

1st reoccurrence?

Down in dumps today. CA125 been gradually rising since I started Niraparib and Letrozole in April....
Robbo16 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.