Second surgery: Less than two years since ultra... - My Ovacome

My Ovacome

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Second surgery

Alice77 profile image
5 Replies

Less than two years since ultra radical cytoreduction surgery my primary peritoneal cancer has recorded and the multi disciplinary team is recommending further surgery...more of the same as far as I can see. Has anyone else experienced this please? Best wishes

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Alice77 profile image
Alice77
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5 Replies
Laz66 profile image
Laz66

Morning, its a scary time for you but positive that they think a second surgery is an option. I have now had 3 surgeries, usual first hysterectomy etc then a much bigger “ ultra radical “ operation, then a smaller op last month. I am not sure of the definition of ultra radical but I know my second one was. You can maybe read my posts when I have reached out on here for help where I have listed what was removed. I had extensive spread . I have recovered well from each surgery and had 2 cycles of chemo. I may be about to start a third lot. Personally I have found the surgeries much much easier to deal with than the chemo. If I can help at a with anything please message me. Xx

Alice77 profile image
Alice77 in reply to Laz66

Thanks for your reply. My last op was the full 9 hour ultraradical stuff although I avoided bowel resection because the six pre surgery chemo cycles had sorted out the disease there. I suppose it just seems so soon after such major surgery to be doing it all over again but you are right to point out that it is actually a positive step and I should be grateful for the option. Best wishes

delia2 profile image
delia2

I think that being offered surgery is very positive ( given you are having a recurrence). I think it’s been shown to have better results than chemo alone and they won’t offer it if they don’t think they can get it all out. I would rather have surgery than chemo myself.

Alice77 profile image
Alice77 in reply to delia2

Thank you Delia for your encouragement...You are right of course, but I am having the surgery and the chemo as well. Still I have much to be thankful for, I know, and am viewing it positively. Best wishes

lesleysage profile image
lesleysage

Hi Alice,

My feelings are similar to delia2 and Laz66 in that I'd feel positive. I don't know which MDT is treating you but if you have any doubt whatsoever as to their recommendation, why not ask for a second opinion? Ovacome Support Team could help?

In 2013, I asked Professor Christina Fotopoulou (Queen Charlotte, Imperial College Trust, London) and many on this site have found her team's surgical skills invaluable - and also those of the Christie Team (Manchester) under Professor Gordon Jayson. I found asking questions of clinicians so helpful in supporting me to face the decisions I needed to make for my body and my life.

Take care, warmest wishes and keep being kind to yourself. x

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