clinical trial recommendations please - My Ovacome

My Ovacome

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clinical trial recommendations please

Riverflo profile image
9 Replies

Good morning lovely ladies,

I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at clinical trials.

Does anyone know of a current trial for high grade serous plat. resistant? I have looked on line but it would be good to hear from someone who is on one.

Thanks and best wishes,

Martine

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Riverflo
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9 Replies
OvacomeSupport profile image
OvacomeSupportPartnerMy Ovacome Team

Dear Martine,

Thank you for sharing your experience here, and for your question about clinical trials which may be available to you.

It is good to hear that you are meeting with your oncologist, who will be able to advise on potential trials that might be open to you according to your individual diagnosis and circumstances.

Our clinical trials booklet contains further information which may be of use to you: ovacome.org.uk/clinical-tri.... This includes sections on different types of clinical trial, reasons to join a trial, and finding relevant trials.

If you would like any support in looking into clinical trials, we would be happy to help. You can send us an email to support@ovacome.org.uk, or give us a call on 0800 008 7054. We're available from Monday to Friday - 10:00am - 5:00pm.

Best wishes,

Alice - Ovacome Support Team

DanL2017 profile image
DanL2017

Dear Riverflo,

There is a new treatment was approved from FDA couple months ago, which might fit your case. You may ask your oncologist to do tumor sample test first to see if you are positive for Fra . The tumor sample need to be sent to other place, your doctor should know it. Please see below link for details about this treatment information:

fda.gov/drugs/resources-inf...

Best wishes

Dan

Riverflo profile image
Riverflo in reply to DanL2017

Hi Dan,Thank you so much for replying. I went on a trial for that drug last year, had a good amount of the folate receptor but unfortunately it didn't help me at all.

Hope others have more luck with it.

Best wishes,

Martine

Lookingahead profile image
Lookingahead

it’s best to ask for a referral to either the Christie or the Royal Marsden at Sutton . They will assess you and offer any suitable clinical trials. Wishing you the very best . 🙏🙏❤️

Riverflo profile image
Riverflo in reply to Lookingahead

Thanks for replying. I live in Spain so unfortunately it would be difficult to access those options and I don't know if there is a similar version here.

Martine x

2016Mags profile image
2016Mags

Hi Martine, I wish you all the best with your research and hopefully the doctors will come up with a trial that suits, all we can do is try to keep this illness at bay as long as possible, Mags xx

Riverflo profile image
Riverflo in reply to 2016Mags

Thanks Mags, waiting anxiously as the scan results are delayed x

2016Mags profile image
2016Mags

🙏🏻🙏🏻

Riverflo profile image
Riverflo in reply to 2016Mags

The onc called and said there isn't disease progression at the moment. Such a relief!!! Thanks for your support. X

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