Year and half into clinical trial

[Bella6500]

I have been on Zejula for 1.5 years and numbers are stable. I take 100mg at night to sleep through the nausea side effect when at firstI started in the morning. I began at 3 tabs and ended up at one. So far so good. I do take Trazadone at night for sleep. For myself I discovered premier 30g protein shakes and raisins help keep my anemia at bay and counts within range..

[Lindaura]

That’s great news, Bella,

For all of us.

For thise in the UK, Zejula is Niraparib.

Are you BRCA positive?

I am about to start on 200 mgs

In April, so glad to hear good news.

Thanks so much for posting.

Best wishes,

Laura

[Hidden]

Thank you for sharing this. It’s helpful for those of us who will be starting on a parp inhibitor soon.

[Yoshbosh]

How lovely to hear how well you are doing! Long may it continue. Vicki x

[Hopefulgal1]

Fantastic to hear you’re doing so well and may you continue to do so - good luck to you and others out there who are about to start and continue to keep us posted! X

[Wanthealth]

I will be starting on a parp of some kind when finish this round of chemo (4 more to go) is nausea typical with these meds? And do they keep you awake if taken at night? Just wondering what to expect hugs

[Lizjj in reply to Wanthealth]

I have been taking Olaparib (Lynpanza) since feb 1. 2018, after chemo etc. I am braca2 pos. I am not experiencing any side effects at all and will be going in for blood tests end of March. HUGS

[Wanthealth]

Thx for replying , good info appreciate you sharing! I was to of had a treatment today ( on carbo/gem. One week them just gem the week after then a week off and so on ... but my WBC dropped to 500 lowest ever been so no gem treatment today😞. Wondering how to get it up ( know there really isn’t any magic answer) But sure wish there was🙏🏻 Hope you continue to stay well. Hugs. Sue