Hi lovely ladies,
I wanted to let you know I had a meeting on Thursday with my oncologist re having caelyx or tamoxifen as Carbo didn’t seem to be working for me. Well I don’t know if he’d bumped his head or something but it was like talking to a different man from the week before. He was very patient and listened to all my questions regarding treatment options and also about clinical trials and getting a second opinion.
To cut a long story short we decided between us to give tamoxifen a try, I have six weeks supply then a return clinic visit to see how things are doing and blood tests. If for any reason I decide it’s not for me I can change my mind and try the caelyx. If this then doesn’t work he will happily sort out my referral to the Christie. He made a point of telling me it seemed early days to be looking at trials when there were still tried and tested methods to try first. His whole manner seemed more positive, my poor body has been feeling completely battered and I have lost so much weight which is why I decided to give the tamoxifen a try first. I have taken my first dose today and feel ok so far. I want to feed myself up after having 7 litres of fluid drained on Monday which has made moving about a lot easier. I hope I have made the right decision for now. Fingers and paws crossed that something goes right for me soon.
Love and hugs to all ladies fighting