burning diarrhoea

Did any of you ever have burning diarrhoea after chemo? And, if so, did you find any way to ease it? 

[Lyndy]

Awww poor you! I would suggest using anusol wipes which are soothing, drinking lots of water but not necessarily taking any Imodium because it needs to come out xx

[chemlcali in reply to Lyndy]

I did take Imodium. I had it for 3 yea=s. All during chemo and radiation. I still have it from time to time. Not a nice side effect..

[Hidden in reply to chemlcali]

Thank you. So kind of you to reply. I will give it a couple of days and if it’s still over 20 visits to the loo, I will ask if I can take an Imodium. Anne 🤗

[Hidden in reply to Lyndy]

Thank you, Lyndy. So kind of you to reply. I hadn’t heard of anusol wipes. I’ll definitely get those. My oncology team gave the same advice about Imodium. Thanks for your kindness.

Anne 🤗

[Tillymint61]

Sorry you are having such a horrible side effect. Most important keep hydrated. Use 'Sudocrem' as a barrier cream on your bottom. Make sure you let your team know and seek their advice too.

Hope it eases for you soon. X

[Hidden in reply to Tillymint61]

Thank you, Tilly. So kind of you to reply. I will email my team now. Good idea re Sudocrem. I’ll give it a g. Thanks for your kindness.

Anne 🤗

[Trickysite]

I use savlon and sometimes metanium around my anus to calm the skin down.

[Hidden in reply to Trickysite]

Thank you. So kind of you to reply. I hadn’t heard of metanium. I’ll definitely get that. Thanks for your kindness.

Anne 🤗

[Trickysite]

I forgot to say that pure cotton knickers are a must. Metanium may be on prescription only.Bit messy as the cream is heavy but I used to use it on my babies for nappy rash. now me!

[Hidden in reply to Trickysite]

Thank you. I’ll see if they’ll add it to my prescription. That’ll save money because our drug scheme in Ireland sets a maximum cost of €80 per month per person.

[OvacomeSupport Partner My Ovacome Team]

Hi WoolyHat

I’m so sorry to hear that you’ve been experiencing burning diarrhoea after chemotherapy. I can see that the forum community have been sharing their experiences about this, which I hope has been helpful for you.

Have you had the opportunity to discuss this problem with your oncologist or a member of your clinical team? They will be able to offer you personalised medical advice and may prescribe a medicine to help alleviate the diarrhoea. You could also contact the 24/7 chemotherapy helpline for immediate assistance.

I really hope you are able to speak to a healthcare professional about this soon and that this resolves quickly for you. We are here to support you, so please don’t hesitate to contact us if you would ever like to talk things through. You can call our support line on ([phone], email us via [e-mail] or reply to us directly through this forum. We’re here Monday – Friday, 10am – 5pm, to discuss questions, provide relevant information, or just have a friendly chat.

Best wishes

Annie – Ovacome support

[Hidden in reply to OvacomeSupport]

Hi Annie, Thank you so much for replying to me. I have been in touch with my oncology team. I’m having a better day today, so far 🤞🤞🤞🤞.

I have your phone number saved and I probably will use it at some during this round of chemo.

Thank you for your support. It’s such a great service!

Anne

[OvacomeSupport Partner My Ovacome Team in reply to Hidden]

Hi Anne

No problem at all, it's great to hear that you have been in touch with your oncology team and that you're having a better day so far.

I'm pleased to hear you have our phone number saved - please don't hesitate to let us know if there's anything we may be able to help with.

Best wishes

Annie - Ovacome support

[Alfiepop]

Ouch! I’m sorry for you. Medi Derma-s barrier cream 28g tube is available to purchase on line but your gp/oncologist may be happy to prescribe it. It is widely used in the NHS and I can personally recommend it’s effectiveness

Good luck

Lisa

[Hidden in reply to Alfiepop]

Hi Lisa,

Thank you for that reply and for that personal recommendation. I will definitely get it.

I’m having a better day today, so far 🤞Thank you for your kindness 🤗

Anne

[mizpurple]

You've got several recommendations for barrier creams and that may be the answer for you. I will also suggest you consider a simple cold water bidet for cleaning - inexpensive, easy to install, minimizes toilet paper use and friction in the sensitive area, especially when you are going several times a day. After bowel surgery, I found having the bidet absolutely essential. All the best! Deb in Colorado

[Hidden in reply to mizpurple]

Thank you, Deb. I’ve been thinking about a bidet and wondering why we don’t all have them. It makes perfect sense. Thank you so much for your reply and your kindness.

Anne 🤗

[Maus123 in reply to Hidden]

Sorry to hear of your troubles. I had a similar experience when on chemo and found using a handheld travel bidet (filled with warm water) and 'ultra sensitive' moist tp helped to keep the skin irritation down. Plus lining the path to the loo with night lights, keeping doors open and the hallway clear... like Formula 1 just for the runs .Hope it'll get better soon. xx. Maus

[Hidden in reply to Maus123]

Thank you, Maus. It was very kind of you to reply. I like all your ideas. It’s not as bad now, thankfully.

Everything seems more difficult for this 2nd recurrence. I’ve never suffered from so many bowel issues before.

I hope that all is well with you.

Anne 🤗

[Hidden in reply to Maus123]

I’ve had a fair amount of blood in my stool this morning. I wonder how worrying that is.

[OvacomeSupport Partner My Ovacome Team in reply to Hidden]

Hello again Anne

I’m so sorry to read that you’ve had a fair amount of blood in your stool this weekend. Have you been able to access any medical input about this? Your oncologist or clinical nurse specialist should be able to offer personalised guidance about this new symptom and may suggest approaches to help manage it. You could also contact the 24/7 chemotherapy helpline number for assistance. Your GP may be able to offer advice about this too.

I hope this problem resolves for you very soon. Please don’t hesitate to contact us if there’s anything you would like to talk through, or if there’s any information or support we can offer. We are here Monday – Friday, 10am – 5pm on 0800 008 7054, via [e-mail], or through a direct message on this forum if you prefer.

Best wishes

Annie – Ovacome support

[Hidden in reply to OvacomeSupport]

Thank you, Annie. It’s always nice to get a supportive text. I’m actually back in hospital today. Getting platelets, antibiotics and some other drips. Thank you for taking the trouble to reply with useful info.

Anne

[OvacomeSupport Partner My Ovacome Team in reply to Hidden]

Hi there Anne

Thank you for your reply. I hope your time in hospital goes as smoothly as possible and that you soon feel the benefit of the platelets and antibiotics. Please know that we're here for you if it would ever help to talk, or if there's anything we can support you with.

Best wishes

Annie - Ovacome support

[Maus123 in reply to Hidden]

What Annie said. I'd phone that blood thing in or bring it up while you're at the hospital anyway. Better to get it checked out. I had some blood in evidence as well after chemo/Avastin, but turns out it was only an external fissure due to a combination of overly sensitive/vulnerable skin and hard stool (sorry, tmi). Still, I had a colonoscopy just to be sure.Hoping you are receiving timely medical advice on your issue, and crossing my fingers the next chemo goes well for you. xx. Maus

[Hidden in reply to Maus123]

Thank you, Maus, for the good advice. I don’t have that problem at the moment but I’m sure it’ll be back! Have v low bloods now and in hospital for blood and platelet transfusions. 🤞🤞🤞I hope that all is well with you.

Anne 🤗