Endometrial cancer, low platelets

[stparker54]

I was diagnosed with Stage 2 clear cell endometrial cancer in June 2020. This is a rare, aggressive type of cancer. I am in the middle of chemo to fight this cancer, but my platelets are not cooperating. Chemo is always being delayed Dow to low platelets and this has caused me to be concerned about how effective my chemo will ultimately be, given the chemo schedule is always being interrupted.

[Devastated100]

Hi Stparker54,

Have you had surgery yet? X

[stparker54 in reply to Devastated100]

Yes, I had a hysterectomy in June.

[SUE7777]

It's best to talk to your team regarding this and what can be done. Also the Ovacome Support team can advise you. All the very best and try not to stress. Take care Sue xx

[Rankij11]

Hi,

It’s so frustrating at the time !! After my 1st chemo all the others were delayed, and I remember feeling the same as you. However I got there in the end ,weeks over schedule but with a good result . Ca125 from 6000+ to 28. People kept advising me to eat all sorts of things -wheatgrass was one , so awful to take and no effect . Just really have to wait for you bone marrow to get going again . I hope this might help to alleviate some worry ??

Jennifer

[stparker54 in reply to Rankij11]

I've also gotten a lot of advice about what to eat or drink, the latest of which was papaya leaf extract. But nothing is working. Like you, I guess I have to wait for my bone marrow to start properly functioning stparker54

[Ruebacelle]

hi. i had that problem w carbogem infusions. went online andresearched medical sites such as cleveland clinic, mayo clinic etc. [edited by moderators] i tried papaya leaf tea [edited by moderators]. this is not necessarily going to work for everyone but [I believe] it worked for me esp important now that i am on weekly taxol. good luck. also helpful to work w an oncologist who specialized in rare cancers, which is what i did in france altho i just have ovarian.

*Edited by moderators and text replaced with that in square brackets*

[Iwillbeatit]

Has anyone else with OC experienced a tearing type pain on the right hand side of abdomen that rips when you stand up?