Devastated : Hi ladies To say I’m gutted is an... - My Ovacome

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Devastated

Broader profile image
26 Replies

Hi ladies

To say I’m gutted is an understatement 😩

My CA125 is up to 567 so urgent scan tomorrow, ascites drain booked for 23rd November, oncologist appointment to be arranged in next couple of weeks, looks like I’m heading for the chemo unit again.

So much for my 6 to 9 months off treatment I made it to 9 weeks 😡

So out come the big girl pants again !!

I keep asking myself can I do this again so soon ...... we all know what the alternative is and it is not really an alternative is it ?

So I will keep fighting

Hope you are all doing ok, wishing you all well

Christine x

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Broader
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26 Replies
Newbie_2020 profile image
Newbie_2020

Please don't be upset! You can do it and indeed, the fight is on. I hope the side effects will be less this time and the results will be maximised. Take care x

delia2 profile image
delia2

So sorry to hear this. Hopefully the next chemo will be tolerable and effective. Hugs.

Bettyxxx profile image
Bettyxxx

Hi Christine

So sorry to hear your news that’s definitely not a fair amount of time for a break! x I suppose they will be changing the chemo this time so lets hope thats the perfect match for your stubborn little cancer xx good luck and it sounds like you have the strength to fight this again even if it is too soon xxx

Love

Diane

Manchesterlady profile image
Manchesterlady

Sorry to hear this . Yes you can do it , you did it before and this time you will be more informed. Good luck with your treatment . This disease is a complete b.....d

Kwiskwos profile image
Kwiskwos

It pains me to hear this sad news, christine. I am a witness how hard chemotherapy is but we dont really have a choice but to face it. Be strong. And like what you taught me, take one step at a time. I know you got this. Will be praying for you.

Keep on keeping on.

Really feel for you.

You’ve got this xx

So sorry Christine,

it hasn't been a very long break but I'm amazed they're going to start treatment so quickly. That can only be a good thing in the long run. Sooner the better. Your team must really care for you. and so do we.

All the very best and let us know how you're coping.

A problem shared is a problem halved

Lots of love

Angela x

Sashay2020 profile image
Sashay2020

Christine, I am very sorry to hear that you only had a nine-week break after finishing chemo. I hope that the next course of treatment brings better and longer lasting results. Sending prayers and positive energy your way.

Sashay

Tabor profile image
Tabor

Hi Christine, you got this girl and yes we fight each time we go through it again. Please never give up you sound like you are a good fighter. God is with us all the way.

Be strong, positive, and fight. Do what your chemo nurses tell you to eat and do to help the fight.

Take care and God Bless

Pat

Broader profile image
Broader

Thank you all for your lovely thoughtful words.

It sounds like I’ve got a couple of weeks before any new treatment may or may not starts so I’ll take that, just wish Covid wasn’t in the frame, I might have been able to get a few days away, ah well not to be !

Roll on 2021 (not that I’m wishing my time away) but this really has been the mother of all years for me.

Wishing you all well

Christine x

SUE7777 profile image
SUE7777

Hi Christine,

I'm really sorry for your recurrence so soon, I am on Avastin for maintenance after debulking and front line and the Avastin isn't working, don't actually know what the next plan is yes but it all stinks. Lets hope we have a better year next year. Sue xx

Broader profile image
Broader in reply toSUE7777

Sorry the Avastin isn’t working, this really is an insidious disease, we all fight so damned hard only to be floored again and again.

We mustn’t let it beat us, Let’s show it how tough we really are.

Chin up, big girl pants on, kick it’s ass

Wishing you well

Christine x

SUE7777 profile image
SUE7777 in reply toBroader

Thank you Christine, my pants are so big at the moment you could call me Bridget Jones.

Sue xx

Caleda4 profile image
Caleda4

Hello Christine,

I was so sorry to read your ordeal as it is so unfair. You sound quite a tough lady and determined so as you say you will have to get your big girl pants on again. I hope that the next lot of chemo does the trick for you and that you don't have to many problems.

Take care, x

Birdsong222 profile image
Birdsong222

Hi Christine

Remember when they said "we treat it like a chronic illness' and you thought ok thats good, lots of treatment options. Never loose sight of those options. I finished Carbo/Caelyx in June and commenced single Taxol in August. So yes you can do this, as you rightly said we have no alternative.

Totally agree about how covid is taking away so much from so many of us. 🥶😷

Goodluck.

Sylvia x

Broader profile image
Broader in reply toBirdsong222

Yes, I’d forgotten those words, chronic illness. Thank you. I’m feeling more positive today, fed up of crying and feeling sorry for myself, have to say it’s good to know I’m not alone, ( Although I wish none of you had to go through this ) don’t know what I would do without all you lovely ladies, it’s such a lonely dark place sometimes.

Onwards and upwards, off to Bognor hospital soon for catheter put into chest port for CT scan later today at Portsmouth.

It feels like a day out (how sad) but funny

Christine x

Hi Christine, will be praying for you and hoping that you can get through your next treatment ok. The port will be good for your infusions or any blood transfusions that you might have in the future. I didn’t like having my port put in, but it makes the treatments much better. Take care and keep the faith, Donna

Broader profile image
Broader in reply toPianoplayer731021

Hi Donna thank you for you positive words.

Just had a nightmare time at the ct scanner, the contrast liquid went everywhere I came home absolutely soaked, they just couldn’t get it to work properly... but I think they got there in the end ??

Young nurse went to get me some scrubs to travel home in and came back with a size 12 tee shirt, so funny 😂 me being nearer size 18 lol so came home in wet clothes.

All in all it was a round trip of 3.5 hours and a good soaking

Friday the 13th I reckon 🥺

Christine x

Hi Christine, what an ordeal that you went through. I never heard of that before. Sure sounds miserable and that you have to travel so far. Hope that the dye worked so you don’t have to go back. They probably can tell right away if there wasn’t a good scan reading. I’m going to remember that when I have my next scan. Sorry that you had to go through that. Hope your scan is ok on the results. Keep praying and don’t lose your faith. That is what keeps me going. 🥰Donna

Hi again, I only use my port for blood transfusions or chemo infusions. I have my ct scans and blood draws through a vein in my arm. If you get an infection with your port, it is close to the heart. That is why I only use it for long procedures.

Broader profile image
Broader in reply toPianoplayer731021

I absolutely hate having cannulas in my hands so I had the chest port fitted, but it bit me on the bum today lol

Do you have veins that are hard to see? Thought that is why they use your hand instead. My veins are so clear and right under the skin. They never have a hard time trying to find them. I feel bad if that is the case. Hope that you have a better time with your port when you need it. All of these things we go through are really trying. It’s nice to know that we aren’t alone in this journey. Take care

Frenchhouse3 profile image
Frenchhouse3

Hi Christine, yes, keep on fighting, the next lot of treatment might just do the trick and kick cancer’s arse for good!

Wishing you much love and luck

Denise xxxxxxx

win_56 profile image
win_56

Hi Christine so sorry to hear that you are back on treatment after such a short time and I know you must feel devastated. Have a good cry and let it all out then get your fighting gloves back on and kick this beast of a disease back into touch. You are a strong person and you can do this!!! We are all behind you and here for you. Sending you a virtual hug. X

Broader profile image
Broader

Received my oncology appointment 24th November, need to try to up my fitness levels for soon after that, I can only think it’s going to be chemo again as my CA125 is rising, unless anyone has followed a different path with a rising CA125 ????

I’m trying to get my head in the right place, I think I’m getting there.

Thank you all again for you kind thoughts and positive push, I really needed that.

Take care everyone

Christine x

Newbie_2020 profile image
Newbie_2020 in reply toBroader

I shall be thinking of you on the 24th. I hope it is not as bad we, all, and always tend to anticipate in those situations. Whatever the next stage will be...You can do it! xx

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