Further update on re occurence

[Cazbird]

Further to my last post. Starting a 4 weekly carbo/caelyx combination on Thursday. Been told I might get to keep my hair this time. Lots of love to everyone xxxxxx

[Differentforgirls]

Hope this next line of chemo isn’t too tough for you.

I know how it feels when they tell you it’s unlikely you’ll lose your hair. Seems so vain but you just want to look like yourself before cancer ( or as near to as possible) don’t you? I’m having a trim up with my hairdresser on Monday 💇🏻This pandemic has given me the chance to really grow it. Looking forward to having it shaped & tidied up. Then I’ll sort my grey roots out 😄

Best of luck for this next stage in your own journey.

Take good care xxx

[Cazbird in reply to Differentforgirls]

Thank you. I'm sure your hair will look amazing when it's done. I found losing my eyebrows and eye lashes made it seem so much worse

[Differentforgirls in reply to Cazbird]

Yes indeed. I avoided looking in the mirror for a long time. If I did catch a glimpse of myself, I’d shed a few tears. Thank goodness they grow back.

Not long finished my 2nd line chemo & luckily it didn’t cause hair loss this time. It’s such a relief isn’t it?

Stay safe & well xxx

[Cazbird in reply to Differentforgirls]

Glad you didn't experience any hair loss this time. Hope the treatment went well. How are you feeling now? X

[Differentforgirls in reply to Cazbird]

I’m getting there thanks. Was pretty sick on my new meds ( Niraparib) for the first week. Not even a fortnight since I started taking them. Got a blood test Tuesday to see if they’re affecting my bloods.

How many cycles are you expecting to have on this new combo chemo? Will be thinking of you Thursday.

Xxx

[Cazbird in reply to Differentforgirls]

I'm having 6 cycles again. Hope your blood test goes ok. Let me know . X

[Mumsie13 in reply to Cazbird]

Agree with you. Eyebrows define the face. I looked weird until I mastered applying eyebrow makeup.

[Caleda4]

I hope the Carbo/ Caelyx goes well for you. x

[Cazbird in reply to Caleda4]

Thank you. X

[Hidden]

You would be extremely unlucky if you lost your hair with the Carbo/Caeylx regime. My hair thinned but only slightly on top, no one but me noticed. Get a good thickening shampoo & conditioner, I used Loreal. Good luck x

[Cazbird in reply to Hidden]

That's great. How are you feeling now? Xxxxxx

[Hidden in reply to Cazbird]

I felt well on Carbo/caelyx, I then went onto Niraparib for maintenance but that didn't work. Am currently on Carbo/Gemcitibine and feeling well.

[27-359]

Hi. I started this regime last Thursday. Apart from nausea, and feeling a bit spaced out, I think I'm ok!

Jenny

[Cazbird in reply to 27-359]

That's good. I hope your treatment goes well. X

[SUE7777]

Losing your hair is horrible I did absolutely everything to hang onto mine and in the end because of shielding I had to shave myself with my ladyshave. What a mess. People refuse chemo because of losing there hair, the nurses in the chemo lounge told me. I hope this treatment puts you in NED forever. All the best and take care Sue xx

[Doglover1410]

I didn’t lose my hair with this combo so hopefully you’ll be ok. I did have very dry, sore and cracked skin, mostly on my hands. Lots of moisturiser, I used Aveeno repair (the blue one I think it was) and E45 on the rest of me! Good luck, sure you’ll be fine xx

[Numi]

Hi. I had the same regime for my recurrence, which came when my hair had just grown to a decent length (albeit a completely different colour) after chemo the first time round and it just kept on growing and getting thicker. Hope that will be your experience and the treatment goes well.

[Cazbird in reply to Numi]

Thank you. Glad you kept your hair. It sounds like it grew lovely. X

[Mumsie13]

Hope carbo/caelyx goes well for you. I'm a couple of weeks past my 2nd infusion. So far it's doable - some days I I feel really tired and get "chemo head" and also get the odd bout of nausea which I didn't experience first time round. I haven't actually vomitted though. So it's a bit different this time round. My hair seems to be ok and is in remarkably good condition. If it's thinning I haven't noticed yet🤞 As someone said, you would be very unlucky to lose your hair. Wishing you the best with everything.

[rosebine]

Ive had one dose of this, so far not too bad. I hope my hair d oesnt thin on top as when it came back after first lot of carbo/taxol its quite thin on top already although thick back and sides ! Not sure if I will get to carry on though as slight heart problem may mean I have to stop. So far not lost taste but cant remember when that happened with the first chemo and although I do feel a bit sick Im also ravenously hungry!

[Cazbird in reply to rosebine]

Hi, I hope everything goes ok with future treatment. X

[delia2]

Good luck with it. I found this combo much easier than frontline. I had three great weeks each cycle except toward the end I stayed tired more. It got rid of everything except an 8 mm tumor which has further shrunk on Olaparib.