Carbo Gem

[Caleda4]

Hello ladies,

I hope that you are all managing to stay as well as possible.

I have had two cycles of Carbo /Gemsar,& my CA 125 has dropped from 485 to 220, which I am over the moon about. They did not have yesterdays blood test results for the ca125,but hopefully it will have dropped again,fingers crossed. Yesterdays test showed low neutrofils 0.8 so I had to return for 8.30 for a further test this morning & thankfully the neutrofils had gone up to 1.8 overnight,so I was able to have the single dose of Gemsar.

Has anyone heard from Laura,I wondered how she was getting on with the Carbo. I hope that she is ok.

Caleda x

[delia2]

That’s great news for you! I’m wondering about Laura too and also about Judy (Maxjor). Xx

[Caleda4 in reply to delia2]

Thank you Delia, It looks as though Laura is doing fine thankgoodness.

Caleda xx

[Katiebairdie]

Hello

I’m also on carbo Gem. My CA125 rose after first round hopefully 2nd round will show an improvement. I was given filgrastim so I had no promlems with bloods. Ask if you can have filgrastim and it would be one less worry for you.

Good luck with your future treatments.

Kathy

[Bowler70 in reply to Katiebairdie]

Did you have to pay for the Filagastrim yourself? I was told I would have to part self fund here in Scotland at£100 a shot. I have had 9 so far but haven’t actually had the bill.

Irene

[Katiebairdie in reply to Bowler70]

No payment was required. I didn’t ask for it. It just appeared at the end of my chemo session. I hope you don’t have to pay up.

Kathy

[Caleda4 in reply to Katiebairdie]

Hi Katie, Thank you for the information on Filagastrim,that is interesting. I will ask at my next Consultation.

I hope the Carbo/Gem works for you, I will be keeping my fingers crossed.

Take care,

Caleda xx

[Lindaura]

Hi Cakeda,

I am doing just fine on the plain old Carboplatin regime, but wish I could try the Gem again.

My eating has been much better this time around, Cycle 3, but I do tire easily if I try to do too much, which is a drag. Doing too much is just the teensiest bit above doing nothing.

I don’t post very often, unless I have some special advice to give others or I am looking for some advice for myself.

This forum seems to provide plenty of great support without my 2 cents, but I do love it.

I am very jealous that you get to have Carbo and Gem and wish I could join you, but here’s hoping that the Carbo does the truck - it has so far...

Be well,

Hugs,

Laura

[Birdsong222 in reply to Lindaura]

Hi Laura

Good to hear your doing OK. Can l ask what happened with the dice trial? Like me you have had several recurrences and l am interested in the fact they are still giving you carboplatin.

My latest treatment with carbo/caelyx was halted after number 4 as ca125 kept creeping up,last one 946. Now l am being classed as carboplatin resistant. Running out of time looking for a suitable trial, active symptoms and plural effusion, so it's looking like single agent plaxitaxol. For many obvious reasons not looking forward to this as a fourth line. Feeling rather deflated at the moment. Stay well. Sylvia x

[Lindaura in reply to Birdsong222]

Dear Sylvia,

They did classify me as platinum resistant, but that never made sense to me.

I failed the DICE trial, with weekly Taxol, which kept me sick for six months, and did not stop the progression of the cancer.

Gemcitabine alone is a sting cancer fighter, terrific at destroying fast dividing cells, like cancer cells.

Unfortunately, it also destroys fast dividing cells like your bone marrow cells, so it decimated mine and I had to come off of it.

Still, we are all different and [you could ask about] Gemcitabine alone (edited by moderator).

Best wishes and hugs,

Laura

[Birdsong222 in reply to Lindaura]

Thank you for that suggestion. My husband thought the same, I have had gem before with carbo and l had a good response. I then started Olaparib but by 5 months again had active cancer.

There was a time l was so pleased to be non brca. I have2 daughters and a grandaughter! But looking for a trial for hgs oc non brca is a night mare and l feel that l am going down hill in the meantime. Catch 22 if l start another chemo now it will exclude me from a trial whilst on treatment. I can only wait to see what happens this week. I am lucky to have access to my consultant who will act in my best interest. S X

[Caleda4]

Dear Laura,

I am pleased that you are doing ok just with Carbo,& fingers crossed it keeps going that way. The carbo knocks me with tiredness when I have the combination of carbo/gem, but I do recover, reasonably quickly.

These two weeks now after the Gem on its own,help me to get back to normal thankgoodness.

Take care of yourself & keep safe.

Love Caleda xx