My new brooch I bought myself to celebrate the early signs of hope. My Ca125 has dropped from 374 last month to 155 yesterday after just 2 sessions of gem/carbo.. I was so worried that I had become carbo resistant but this has really made me hopeful. I know it's still early days but I feel so much more positive.
Gem/carbo: My new brooch I bought myself to... - My Ovacome
Gem/carbo
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Welshandproud
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78 Replies
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That’s great news! Hope is good and so are results! Xoxo
Thank you Delia
That’s great news. Beautiful broach. Good luck x
Thank you xxx
Great news may it long continue to fall, gives you such a boost to have such a great response after only two sessions 😊
Love your brooch is it an ovacome brooch ?
Maggie x
Thank you. No it's from a company called ribbons with meaning but I love it xx
oh the brooch is beautiful and you definitely deserve to treat yrself. So pleased to hear the chemo appears to be doing a good job!! Kathy xx
Thank you so much Kathy xxx
Yay!! Interesting about carbo resistant. My doc told me if I stayed in remission for 9 months, that means he can use the same chemo as before. If it's 3 months, it's not a good idea, 6 months is maybe ok. I think this was about carbo resistance? Just to note, he finally explained that all my joint issues may easily be because the carbo has a tendon related side effect. Of course folks have different responses. Great news about CA 125. Yes and that acted super quickly and kept me in remission. Now almost 6 months with only Avastin, and I am still okay 
Thank you Carol. I had been told that if it came back within 6 months then I was probably carbo resistant but mine came back in 5 months. My oncologist thought that it was a worth a go and it looks like she was right and I am so grateful. Interesting about the carbo tendon issue. That makes sense
So pleased that your treatment has been so effective too. Congratulations xxxx
I love that broach, too, and congratulations!!
Thank you xx
what wonderful news! I can understand your elation, I will be keeping everything crossed that your CA continues to come down.
Thank you so much Lyn xxx
Wonderful news! Love the brooch. Fingers crossed 🤞 your CA keeps on a downward trend Jenny xx
Welshandproud• in reply to
Thank you Jenny xx
Oh that’s fantastic news Sian! I’m so glad for you and the brooch is lovely. I hope your CA125 continues to drop .
Love
Alex
Thank you Alex. Xxxx
Great news Sian. I’m finding CarboGem manageable - I had my first one of the second cycle yesterday. I saw my consultant on Wednesday - my CA125 has gone up a bit, it was 1140 and is now 1260. She thinks it’s too early to be worried - my readings have always been a bit bizarre, but I’m hoping it will come down over the next few chemos.
I love the brooch - you deserve to treat yourself during treatment. I tend to buy wool and fabric - current projects are socks and a short sleeved dress to make PICC line access easier!
Onwards and upwards for us! Much love Ali x
Thank you Ali. I remember on my first line treatment that my ca125 went up before dropping. I'll keep my fingers crossed that this will be the case for you too.
I'm glad that you are finding this treatment manageable too. I must say so far it's been doable for me too!!!
We do need to treat ourselves I agree. You sound very creative. I am very impressed. You must put up some pictures of your latest creations. Sending you lots of love xxxx
Wonderful news Siân.
Hope your CA125 continues to drop & you feel up to living your best life xxx
Thank you different. I feel so much more positive xxx
Yay! By the way, I’m Lynne xx
Great news! Hope CA125 continues to drop x Lovely brooch xx
Thank you so much xxx
Great news Sian and love the brooch. Xx
Good news. Keep positive and enjoy wearing your beautiful brooch. Xx
I will do. Thank you xxx
This is the best news you could wish for. Long may it continue. I am so pleased for you. It was lovely to catch up with you on Thursday in our little group. Your brooch is lovely too.
Hugs and best wishes, and hope to see you soon.
Lorraine xxx
It certainly is and I can hardly believe it. It was so lovely to meet up with you and the other ladies on Thursday. We had quite a natter which was lovely. I still can't quite believe how you've managed to hold on to such a head of hair. You look amazing. Hopefully we can meet up again soon xxxx
Hi there, I’m new to Ovacom and have just read your post. So thrilled for you that your CA is coming down so rapidly; fantastic news! Love the brooch too, so pretty.
Love Denise xxxxx
Thank you Denise. Welcome to the friendliest group that no one planned on joining, but is so glad they did. You will find so much support and wise words here. A real lifeline xxxx
That’s really good news on the chemo front - and a lovely brooch too x
Thank you so much xxx
Great News.
Hope CA125 continues to fall.
Gorgeous brooch.
Lots of luck
Janet
Welshandproud• in reply to
Thank you so much Janet xxx
So happy to hear this Sian! Long may it continue! What a great idea to get that brooch. A good reminder of the hope if you ever need it. oxoxox Judy
I thought that too Judy. A visual reminder of how far I've come in the last 3 years and 5 months since diagnosis. At diagnosis I was told that I had a life expectancy of 4 and a half months if I did nothing. I am so pleased that I started treatment so quickly.xxxx
Beautiful brooch for a beautiful lady. Well done on the excellent CA125 drop, long may it continue in this direction. Must be such a relief for you all to have this response if it was thought you had possibly become carbo resistant.
As always, huge encouragement, big hugs and love Sian ❤️Xx Jane
Hi Jane yes it was such a huge relief after the Niraparib not working and the Letrozole having no effect. I was starting to wonder whether I would ever get an effective treatment again. This has boosted my confidence so much. Xxx
Thrilled for you Sian; such hope!! 🥰
Thank you Linda xxx
Such good news - beautiful brooch. x
Thank you and yes I'm very pleased with it xx
That's great news for you .Hoping for you too that it continues. What a beautiful symbolic brooch, just what you need
Love and hugs
Claire xx
Thank you Claire xxx
Great to hear positive news, I’m keeping everything crossed for you Sian.
Gorgeous brooch.
Sending hugs
Joy xxx
Thank you Joy xxx
Yay! So happy for you...keep going to cancer free! Pretty brooch, by the way
Thank you Rhinesue. That would be incredible xxx
What a beautiful ribbon broach. You've got this girl wear it with pride
Thank you mad Molly xxx
That is such good news and long may it continue . Your beautiful brooch is a happy reminder.
X X
💚💕
Thank you Molly xxx
So great to hear your news and that the chemo is doing the trick, that’s a great drop in the numbers and sounds so positive!! The brooch is so pretty and very symbolic, a lovely reminder that there’s so much to be hopeful for 💕
Liz Xx 💖
Thank you so much Liz. I still can't quite believe it but it made me feel so much more positive. The brooch is even prettier and very sparkly in real life. I'm very pleased with it and what it represents.
Thank you so much Katie. My bit of bling to show how excited I am feeling on the inside xx
How lovely xx
Thank you Mrs Tadpole and how are you doing?
Not too well at the moment.I have had another spell in hospital with bowel problems and nausea .I came home today so hoping that the pain medication is successful this time. Annxx
Oh I'm so sorry. That's just not fair. I hope you're starting to feel stronger now. Sending lots of love xxxx
Thank you xx
You're very welcome x
Been away and just catching up on posts. So good to hear your doing so well on this treatment. I appear to be on my way to more chemo.. Good to read it's doing the job, long may this continue. All the best. Sylvia x
Well it seems to be working for me so I'm sure it can work for you too xx
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