I've had 3 days of tears and sleepless nights since finding out my CA 125 has risen from 9 to 12 to 21 after 10 hopeful weeks on Rucaparib. Might not appear to look very alarming but my last recurrence showed a similar rise and a CT scan revealed 3 tumours. The largest being 12cm. 6 months of Carbo/Caelyx reduced them by 2 thirds but the tumours still remained. The surgeon has told me she's sorry but the tumours are in a place she just can't get to (in my upper abdomen close to the spleen) so a second operation is out of the question and probably wouldn't increase my life expectancy. I'm having a CT scan during the next few weeks to see exactly what is happening and in the meantime carrying on with the Rucaparib. I'm so afraid the parp isn't working and few options are left. Niraparib didn't work for me. I was taken off it after drastic blood results. It's only 5 months since I finished my last chemo. Has anyone out there had a similar experience and can give me strength and hope to get through this.
Love from Angela xxx