Hello new to the group PPC

[Supermary]

Hi all

I responded to another post

I’m Margaret

I had a CT SCAN this past week showed signs of PPC . I went to the doc on Tuesday thinking appendix and they sent me that day for a CT to see .

First call my primary and radiologist was ovarian cancer

Oncologist the next day thought PPC

To date I have also had blood work genetic test and a biopsy this past Friday.

I am waiting on results

I have a PETSCAN next week and a second opinion lined up

I am 56 , two teenager children, and a recent(early April) hospitalized but made it out COVID survivor . I can’t believe I am facing this now . Very scared

[Paulat7]

Hi Mary

Sorry to hear you are going through this & I agree if you google everything is so depressing. I am waiting for a CT scan & just petrified, I have a 4 year old daughter who is my whole world & the internet has taken me to a really dark place these last couple of weeks. Can I ask what symptoms you had & if you had the ca125 test ?? Mine came back at 51. I know not very high but it’s double what it was when I had the test last year!

[Supermary in reply to Paulat7]

I honestly don’t know If I Had the Ca125 test

They took five vials of blood plus a vial for DNA I think BRAC1 and BRAC2 I should have the blood test results this week

I have definitely spent too much time

With Dr Google

Today I felt more tired than other days

My symtoms started about 10 days ago with a feeling of fullness in my right pelvic area and a pain near my right ovary when I pushed In with my finger

No Nausea no weight gain

Still eating ok and digestion and bowel seem good

I did not have a fever .

But as. Recent COVID survivor I was really awAre Of my body especially my ridge side which is where I had had the most lung pain . Strange thing was I had covid bilateral pneumonia in April and my right side always worse . My lung X-ray is clear now but this new pain is on my right side again but near my pelvic region

The biopsy was from that area

The CT scan showed lining thickening

I would say the pain is upon standing up from a sitting position then it dissipates

Sleeping on that side is also uncomfortable

[Supermary in reply to Paulat7]

All tests were good except Ca125 came in at 370

But I don’t feel bad

[Manchesterlady]

So sorry that your going through this , I know how it feels to be overwhelmed with fear. Your team are certainly on the ball getting you all those tests so quickly. I’m sure other ladies will agree with me when I say stay away from dr Google.

Have you got a maggies centre near you ? If so I cannot recommend them enough. You haven’t got your diagnosis yet . I know it’s easy to say try to distract yourself if you can . The waiting is agony.

Sending hugs and prayers x

[Supermary in reply to Manchesterlady]

Hi

I never heard of Maggie’s center

I will need to look it up

[Amiieb]

Welcome to the group and sorry to see you here. Although I can’t help with your diagnosis, I do want to say you’re not alone in this group. It’s been absolutely brilliant for me and my mum so far. I’m 29 and my mum is 57, who was diagnosed stage 3 PPC in January. She had similar symptoms to you, she just one day felt really full after a meal she can usually finish no problem. And like you mentioned, she knows her body so she went and asked for a scan. I remember the first few weeks during and after diagnosis and honestly they were the worst part of the journey so far for my family. The ‘not knowing’ and ‘waiting’ part feels like a life time and you can’t help google all the information. If I can offer one piece of advice, don’t think of this as a death sentence, there’s ladies on here who are fighting PPC 10 years plus now which gives me so much hope for my mum. My mum is BRCA2 positive, as am I unfortunately. She’s responded brilliantly to treatment so far. Her CA125 started at 3000+ and so far she’s had 3 chemos, debulking surgery and has just had the 4th round of chemo, out of 6. Her CA125 at the half way point after her surgery was 76 and the doctor said they believe they got rid of it all in surgery. I’m sure if you would like to talk to my mum about any questions she would be happy to help. She’s being treated at The Christie in Manchester, which also has a maggies centre next to it.

[Supermary in reply to Amiieb]

I got my Ca125 number today 370

All other blood tests and numbers were normal

Oh well

[Ruebacelle]

Scared is normal. It's the uncertainty and not knowing who to trust. Welcome to the site and hope your tests are less bad than you fear.

[Supermary in reply to Ruebacelle]

Got my blood test results today

Waiting on genetic tests

All tests were good kidney liver pancreas and while

Blood

Cell etc with the exception ofCa125

Unfortunately it’s at 370 so I now waiting for biopsy result

[Tulips66]

Hi Margaret, I unfortunately can't take that worry away from you until you get all your results. I didn't get a chance to worry as from the day I went to my GP to the day the gynaecologist told me I had cancer was just 5 days so no hanging around or time to worry about what was ahead, but as my diagnosis was Christmas week I hope I never have one like it again. I hope you don't have to wait around too much longer because I think the not knowing has to be harder ☹️ All I can do is wish you all the best & hope that your results will be negative for OC & no offense but that you won't have to join this group of women who turned out to be positive for it. Take care Xx

[trackicon]

You are stronger than you think Margaret! The best thing you can do for yourself is stay positive. There are so many treatments today and they are personalized for your specific needs. I will hold you in my prayers.

[Supermary in reply to trackicon]

Thank you 🙏