Feeling a bit wobbly

[Purple2589]

Hello, I'm new on here. Haven't actually been diagnosed with OC as yet but I have some of the symptoms, CA125 is raised and ultrasound showed up something suspicious. Saw consultant today and hopefully will have CT scan next week. It's all a bit scary. I had breast cancer 10 years ago but this feels worse somehow. I have good friends I can talk to but I find these sort of forums really helpful because people are going through similar things. Also wondering if anybody has experience of treatment at the RD&E hospital in Exeter? They seemed very nice when I was there today

Best wishes to you all

Amanda

[delia2]

Hi Amanda. I hope your fears will turn out to be unfounded but if you do end up with a diagnosis of OC this is a great forum. I’ve learned so much. I can’t help about the hospital as I am in the States. I wish you the very best luck with your scan! Take care. Xx

[Purple2589 in reply to delia2]

Hi delia2, thank you for your reply. As you say, this does seem like a really helpful forum. I didn't realise it is international until you replied!

All the best to you

Amanda

[FaithRiseUp]

Hi Amanda!

I understand the fear of the unknown! I’ll be praying for a good report for you! And that Jesus will give you comfort!

[Purple2589 in reply to FaithRiseUp]

Hi FaithRiseUp, thank you for your reply and prayers. All the best to you, Amanda

[Katmal-UK]

Hi Amanda, so sorry to read you are going through this, reminds me of nearly 13 years ago when I went through what you are going through now. Can I ask if you have had any genetic testing for the BRAC gene given you have already been through a diagnosis of breast cancer? It sounds like you are being looked after and once the CT Scan is done hopefully you will have answers. I cant help with information of the hospital im afraid but hopefully someone will come along to help. In the meantime, sending you a big hug and welcome to the forum. If you have any questions ask away, there is always someone here that replies xx Kathy xx

[Purple2589 in reply to Katmal-UK]

Hi Kathy, thanks for your reply. I haven't been tested for the BRAC gene. I don't have any immediate family who've had breast or ovarian cancer, so I would think unlikely I have BRAC but might be worth asking about I guess

All the best to you, Amanda

[Sashay2020]

Dear Purple, I too have elevated CA125 level and elevated platelets. The ultrasound shows three cysts on my ovaries and two fibroids. My surgeon described this as “worrisome” in a woman my age (I’m 69). I have my full open cut hysterectomy and exploratory surgery in two days on Monday. I’m on pins and needles so I know how you feel. I have managed to stay upbeat throughout the day, but I have a bit of a wobble when I am in bed at night. I say a little prayer and then I watch cute hedgehog videos or ones with puppies and kittens. Pretty silly but it helps. I’m in Louisiana and I pray that we both receive the news that we want most to hear. I have been encouraged by many of the posts I have read here that I will be able to get though this and enjoy the fact that my daughter is going to stay with me for a month while I recover from surgery. I have been social distancing and so has she. She had a COVID test before she came here and thankfully, it was negative. Sending you positive energy and prayers,

Sashay

[Purple2589 in reply to Sashay2020]

Hi Sashay2020, thank you for your reply, positive energy and prayers. I hope all goes well with your surgery today and you will get good news. It's good you have your daughter to stay with you. I have a cat who is excellent company!

All the very best, Amanda

[Sashay2020 in reply to Purple2589]

Thanks, Amanda. I am very grateful for your good wishes. I will touch base after I return home.

🙏🏽

Sashay

[Lewisriley47]

Hi Amanda, I have been having treatment at the RD&E for the past 7 and half years, l am stage 4 ovarian cancer and l personally cannot fault the hospital in any way! Good luck for the future Pam x

[Purple2589 in reply to Lewisriley47]

Hi Pam, thanks for your reply. I saw John Renninson at the RD&E yesterday and he seems like a good guy.

All the best to you. Amanda

[Lewisriley47 in reply to Purple2589]

Hi Amanda, l to had Mr Rennison as my initial consultant as you say a nice man, you will probably have cancer specialists nurses Gail or Jackie who are really caring any questions and they are only to happy to help, l wish you all the best Pam

[Harleeboo]

My daughter also treated at rd and Exeter ,Mr Renninson ,excellent treatment

[Purple2589 in reply to Harleeboo]

Hi Harleeboo, thank you for your reply. Seems like Mr Renninson has a very good reputation. All the best, Amanda