Paying for Avastin

[dramaredgerbil]

Hi there. The Parp isn’t working and it’s sadly chemo time again so soon. I will be given weekly taxol and I plan to pay privately for Avastin. Can anyone advice me on this?

[vipervictoria]

Hi, I don't know the treatment you've had already, but there was a study in this week's Oncology Practice Update that showed good results from a combination of Gemcitabine & Pazopanib, especially in women who are platinum resistant. Here's a link: practiceupdate.com/c/98700/....

Hope it's worth a read. Good luck, VV

[Neona in reply to vipervictoria]

Thanks this is interesting!

[dramaredgerbil in reply to vipervictoria]

Thank you. I’ll have a look. Are you in the UK?

[Queta]

Hi I am living in Orlando and i am qualified for the laboratory paid for the treatmnet i don't know if you can contac to them and you can qualified for this help too

Good luck and many blessings

[Eiram63]

Hi. I received weekly paclitaxol along with three weekly carboplatin and avastin for a total of 18 weeks. There was a break in the middle for surgery. Now I just receive Avastin every three weeks for 13 cycles. I am now nearing the end and have just one more to go in two weeks time.

Blood results show that when I started 15 month ago my CA125 was in 1000's. Now it is as low as 12 12 and has remained so for months

I feel so apprehensive finishing Avastin. I felt so comforted to know that every three weeks anything horrid rearing it's ugly head would be zapped. I think I am going to be paranoid now with every twinge ache etc.

I am not sure if Avastin has given me side effects as I can't decipher myself whether what I experience is still side effects from chemo, from the cancer ir from surgery.

I have been back at work full time since October. I am not at full speed still, however energy is improving. Brain improving too. Lol. I do suffer badly with painful neuropathy in my feet which has worsened. This i don't know if it is Avastin causing or as I said still late chemo effects.

Have your doctors recommended avastin for you? Is it expensive? I would certainly have more if I had the option. My last chemo was last July and so far bloods and scans are all good. For me, Avastin seems to have worked and mentally I will do miss it

Hope my experience so helps you

[Eiram63]

Hi again. Is there not a trial available that could help.? I am on icon8b, however it was my first illness. I was stage 3 high grade serous. I just read your profile and you seem truly amazing in all that you have done. So sad there was a recurrence. I know that is what we always face with this disease. I didn't realise that there is an option to pay for avastin. Have you had it before?

[dramaredgerbil in reply to Eiram63]

When first diagnosed, I was on the Icon 8b trial. Had a remission of two years. I’m going for private Avastin to add to Taxol which is the NHS standardised treatment. I read about a trial that improved prognosis. It will cost me in the region of £2500/3000 a month. Using my pension pot and savings. What good is money if im not hear to spend it. I’ve found a company called Healthcare at Home and will go with that but still waiting for more information. I think it’s the taxol that gives you neuropathy. Where do you live?

[Eiram63 in reply to dramaredgerbil]

Hi. I live in Coventry. I finished taxol 8 month ago now and feet are certainly no better. Getting worse if anything. Will NHS not provide Avastin again then?

[dramaredgerbil in reply to Eiram63]

No. Unless you can get on a trial. Has Taxol shrunk your tumors?

[ZenaJ]

Sorry I can't help as I was never offered Avastin but I believe it's something you do after chemo. Best wishes, Zena x