Hi All, I hope you are as good as you can be. I am on Niraparib at the moment . My question is what actions are you taking in relation to the virus.Are you socially distancing ,I know we should avoid crowded places which I am trying to do but are you stopping meeting with friends? We are suppose to go to dinner with friends on Sat,do I go ..?
I honestly am not usually an anxious person but this situation as really spooked me.ANY advice will be gratefully received.Chris
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Hi Chris, it’s a worrying time isn’t it! I had to cancel my husband’s retirement do for the second time due to needing to be socially distant. Yes it’s best to cancel anything as you can’t know whether people are infected or not and dinner parties don’t give you at least 2 metres room between people.
Even if we weren’t at more risk it’s the situation here in the U.K. for everyone now to try and stop the spread.
Hope you can reconvene when we come out the other side.
Take care!
Alex
Thanks for that dinner party did not go ahead. Heard today that everyone taking parp inhibitors will be asked to stay in door for 3 months. I am the main source of support for my Uncle who has been in hospital for 11weeks with sepsis ..Left him rather fragile and somewhat disabled. They say he is going to be discharged on TUES I live 22miles away.We have tried to get his bungalow ready for him and got food in freezing stocked.The hospital as assured me he will be having carers in twice a day. I feel very emotional and tearful as I write thus. I just feel as though I am abandoning him.
Bless your heart it is so difficult isn’t it. I can empathise as I have a 95 year old mum living 25 miles away on her own.
She’s just agreed to self isolate. Then after 24 hours had the paramedics out as she had a temperature and d and v. They thought it was c19.
It’s cleared up and looks like it was more likely either sepsis as she had rigors too or as she put it a call for attention!
Can do nothing except try to persuade her to allow neighbours to shop for her as they keep offering. Makes you feel so useless.
But they are on their own journey of learning and making their choices and have to keep reminding myself of that. Whatever their choices are there are consequences. But it’s outside our sphere of control.
We can only do what we can do.
Love and hope things settle for us all soon.
Alex x
I’m in Massachusetts and we don’t do anything except go to the supermarket and drugstore.
Don’t go - the advice is that everyone should do as little social contact as possible - certainly non essential socialising - it’s not just about our own health but helping to buy time for the health care systems to ramp up and be more able to cope x
I started social distancing this week... essential outings only. This morning to the doctor and this afternoon took the dog out but didn’t touch anything or get near anyone 🐶
I live in South Carplina, USA and am totally spooked. Even tho we have few deaths here I'm SC just about everything is closed or closing except essential businesses. For a tourist and resort town, that is horrible. I am choosing to self isolate. I am close to 70 and have even chosen to not have my grandkids over. I cancelled my 5 year CT scan because I would have had to go to the hospital to have it. Staying far away from sick people! My daughter's will do any shopping. Perhaps a nice outdoor picnic where you can spread out might be an alternatives to a restaurant?
I saw my oncologist yesterday for my first three month check since Ned , its just over three months since my last chemo ,he said I should self isolate ,so that's what I'm doing , my husband is 70 ,in good health with no underlying health problems so all he will do is go to the supermarket at the allocated time for the elderly ,its made me sad at what should be a happy time ,but I didn't go through a year of treatment ,feeling dreadful all the time to get wiped out by a virus .Take care .xx
Love your spirit, fendweller! As a 7-year OC survivor, i feel the same way. Didn't spend all last year on chemo to be felled by a virus! Just had a scan and get my results today. Had no idea chemo could be postponed for some of you because of the virus! Part of me would rejoice not to have to start chemo (again), as I feel soooo weak on it. But like you, i haven't come this far to quit when there are options to survive. We might not be thriving, but surviving sure has its benefits! Sending love and positive thoughts to all of you, Gail.
Hope your scan was good . We can do this ,we're all tough ad old boots ,well most if the time ,stay safe.xx
Cheryl
Scan went well. Have another three-month QOL (Quality of Life) time before my next scan. Am grateful. Thanks for your good wishes, Cheryl. Let's all stay tough as old boots!
That's good news ,happy for you ,shame you can't be gadding about to enjoy it even more ,but hey ho we just get on with it don't we .xx
GREAT to read replies
My husband was admitted to hospital on Monday via a & e with a heart attack, & as he had a raised temperature, they had to do a Coronavirus check & take him to an isolation ward, though they didn’t think it was the virus. I was told to wash my hands & go straight home to self isolate. He should get the results today. If he doesn’t have it, I will need to ask if I can take in necessities for him like pjs, washing gear & a book. Then tomorrow I will go to Asda to get some shopping - before 9 as I’m 70, diabetic, & have oc, & know I need to socially isolate as far as possible. I tried to do an online shop last night, but can’t get a slot until Monday week! I am getting my repeat prescription delivered from the local chemist today though. Di
Ps If he tests positive for the virus, I guess I’ll have to ask for some help from my very busy daughter
I have completely isolated myself now except for going to hospital. Food is a problem as there are no home delivery slots to be had. My husband is going to wear a mask now when he goes out. We have a Moldex 7000 series mask each with P3 filters . I wear it all day in the hospital. I take a flask and my own food and sit outside to eat it if possible.
Staying inside here in New York City--except for the little exercise I feel I need to stay strong and keep healthy. I walk---trying to get t 20,000 steps but the last two days (after my gym closed where I swam) I have achieved 18,000 each day. I go straight home after and do not go out again. Cooking from frozen food in the freezer and my husband can shop when we get low. He is an "essential" person at his job and must go to work which is the only challenge I feel I am facing with potentially getting this virus. There are 200 workers where he is (government agency) but they are giving them all 6 feet between each employee. Wish I felt that was enough!
Good for you, Maxjor! I admire you getting your steps in, staying strong and keeping healthy. I consider walking as my only "sport" after so much chemo (7 year survivor). It's good to know what an OC survivor can achieve. Thanks!
There are some great initiatives starting on social media for helping the vulnerable so worth all who are on parp inhibitors or chemo to search on Facebook for local group to see what your neighbourhood is offering. There’s a Coronavirus mutual aid web site for the U.K. showing what people are offering in each town
Me again. Judy, I am so impressed with your 18000 steps and you’re on chemo! I’m lucky if I total 6000 but am working on improving now that I recently finished carbo/caelyx. Still have bad mouth sores though. I’m afraid of the hospital so am cancelling a brain mri for tomorrow because I think it’s just a precaution but have to get labs Tuesday and next week my post chemo CT scan. Them maybe telemedicine for Doctor. It’s weird to spend so much time fearing OC and then suddenly this other fear shows up but we at least have a shot at avoiding it.
What wonders you all are ...
Thank you for the support x
