I'm new to here!!.. This is my story so far...
i took myself off to A&E in September 2015 as i couldn't breathe very well. Turned out I had fluid in my lung, & after ruling a few things out they pretty much said it was pointing towards cancer.
After a couple of weeks in hospital having scans & a drain in my lung I was diagnosed with peritoneal cancer, stage 4C.
It's very similar to ovarian cancer, & is treated the same. I was referred to Christies were I was told I would start chemotherapy in October & that there would be no surgery & at the best they were hoping to manage the cancer for 3 years at the most. I was in shock, & as I'm sure you all know only too well,devastated.
Anyhow I started the chemo, & responded really well & after 4 lots had a scan & was told they were going to operate after all. I had a full hysterectomy in February & had another two lots of chemo which ended in April this year.
After all this I was told that there were no visible signs of any of the disease left!! Again I was in shock.
At my first check up in July the CA 125 was done to 15!!!.. I was so happy, I never thought I would hear such good news ( at diagnosis the marker had been over 1500)
Anyhow at my checkup in October the CA125 had gone to 116
They arranged a scan. The result is clear, even though the CA125 is now 219!!
I am in absolute limbo!!.. Has anyone else had a similar experience?
The oncologist said after the result of a clear scan she expected that it would of gone down
She mentioned it can go up for other reasons, has told me not to worry (???) & that as long as I feel well with no symptoms ( I never had symptoms originally) then they are going to repeat the bloods in 6 weeks.