Update on right decision.

[fendweller]

Well ladies day ten after chemo still feeling dreadful , no improvement so this morning I phoned chemo suit and was told to go in, did usual checks ,blood result was back in half hour , my white cell count is very low ,doctor sent me home ,nurse looked s bit surprised , she phoned me at home to say I'm now much more prone to infection and to go back if my temp goes above or below the acceptable , or if I feel any worse, told them I'm not having taxol next time ,my first experience of this ,any advice welcome .x

[Lindaura]

Dear Fen,

I was very unwell during first line treatment of Carbo and Taxol and basically spent six months in bed, with terrible bone pain and paralysing fatigue.

I had two blood transfusions, several potassium and magnesium infusions and I was a wreck.

But it destroyed all visible signs of cancer ( including the midway debunking surgery).

They can lower the dose of taxol, which they did for me then and are doing now. That could help, but they say that Carboplatin does 90% of the work.

You are not alone.

Everyone is different though and some of us experience much more severe side effects than others.

Best wishes,

Laura

[fendweller in reply to Lindaura]

Sorry you had such a dreadful time , I've felt a bit of a wimp ,but it helps to know I'm not the only one ,hoping things are better for you now .xx

[1916]

O bless you,

Its horrible to feel so ill, I have been on Taxol before with carbo , and just started Taxol on its own 2weeks on 1 week off.

Got to say I don't feel good I only had steroids at hospital none to bring home.

If you are not well you must go back it's not fair they should be able to make.you more comfortable.

God luck

Ann xx

[fendweller in reply to 1916]

Its lovely to get so much support ,thank you , I feel slightly better today ,was able to have a shower and get dry without sitting down , small steps .xx

[Hidden]

Hi

I too had a bad reaction to Taxol and Avastin in 2017.

Ended up in hospital with low bloods but was discharged as told I had more chance of infection in hospital than at home.

Hope things continue to improve.

Best wishes

Janet

[fendweller in reply to Hidden]

Thank you Janet ,I do feel a bit better today . x

[Shorty864]

Yes dear Fend, I had first line Carbo and Taxol and I was so ill, ended up in hospital several times with infections and suffered terrible pain in my joints, as well as permanent nauseous, this was in 2013 and then I went into to remission for 4 years, so it all paled to insignificance. The last time I had Taxol in 2018, they reduced the dose and it made all the difference. Take care my dear, hope you are feeling better. Anne xxx

[fendweller in reply to Shorty864]

That's reassuring Anne ,great that you were in remission for four years , hope you're doing well now .x