Well the little bugger is back. Niraparib has slowed it down and got ride of most of it, I had a feeling it was back due to aches and pains in tummy/back and just feeling not right. Albeit only very small change/growth from last scan in May, which was clear. So looking like weekly carbo/taxol for 3 weeks with 1 week off for 6 months. Had this mix 5 years ago for first chemo and worked amazingly well going me over 3 years NED, so he wants to go down this route as he said I responded so well to it before.
We are due to go away to Lanzarote in 4 weeks, asked if we could go cause I think we need it. He was happy for me to go but said if symptoms get worse, any fluid or generally get bad to cancel holiday and ring them. Which of course I would. So will start weekly as soon as I come back from holiday.
A). Has anyone done this weekly regime with week off, and how was it?
B) holiday or not holiday? Hubby is bit unsure but we would lose money and feel like we deserve it. My nurse said as I left go and enjoy your holiday.
I have to keep on with tablets until I start chemo to help keep it slow growing.
Feeling angry, fed up, devastated. Want to give up but I won’t.