Back on treatment- Hey ho

[Birdsong222]

Well once again everything moved very quickly. Within 2 weeks l'd had my ct scan and re started chemo. This time Carbo/Gem for recurrence after only 9 months. How l hated walking into the chemo suite once again! Well, they were all great, even recognising me with my hair :). They have a new machine to warm your hand. It's like a plastic sleeve which blows warm air for 3/4 minutes. Great, it did the trick as they got the needle straight in. Long may this work for me, as l am reluctant/afraid to have a port. Daft l know as many of you have written to say you would not be without one.

Only slight change to original plans seems to be that they have decided to give me both chemo's every time, instead of carbo/gem then gem alone. Schedule is 2 weeks of treatment, then one weeks rest. Results of the ct scan have initiated this. One session down, 11 to go. Then hoping for a PARB or trial. Fingers crossed l tolerate this, l did really well last time, never missed a single week, except for the three weeks after my op.

Then we shall immediately re book our holiday, treating my hubby to some normal time. On wards and upwards.

Have a good weekend everyone and stay strong. X

[Lindaura]

Hello again,

So glad they rushed you into treatment and I hope this treatment is not too rough for you and that you get to keep your new hair.

Like you, I also was pleased, when I returned to the Chemo Suite, that people recognised me with my new hair - plus, like you, I was soooo very ill the first time round, I could barely walk, but 6 months later I was nearly my old optimistic energetic self!

Now I go in with 2 jovial lady friends who entertain me during treatment and get me snacks!

This treatment I am on takes about 4 hours.

How long is yours?

PS: now I almost wish I had not got this hideous Port. It makes infusion easier, but was such a horror inserting it, and is so ugly, but I will hesitate to have it removed...

However, I am going on the PARP Niraparib sometime in April and I pray to the powers that be, that it keeps me in remission for my new forever.

And the same for you.

Hugs,

Laura

[shortfriend in reply to Lindaura]

Hello Laura, I just wanted to say how much I like your kind, caring and very wise responses to everyone. You reassured me when I just joined the forum a few weeks ago and I see you doing the same for many others, your positive and upbeat approach keeps me going. I hope you keep on posting and wish you all the best in the future. Thank you

love

Pat

[Lindaura in reply to shortfriend]

Thank you for your sweet reply.

Fingers crossed, we all forge ahead and all of us get and stay well,

Hugs,

Laura

[Birdsong222 in reply to Lindaura]

Hi Laura, this new treatment took approx 4 hours start to finish. Luckily l live only 20mins from the hospital, driving a short country route from my home. Passing by a field, with a couple of donkeys which always make me smile.

The hospital installed a new parking payment method over Christmas - vehicle reg id. This for me is an improvement as it means on the days you get chemo, parking is free. Previously it was free only if you parked in a certain car park and it was always full! Reason being it is very close to the hospital. I am always shocked by how people with nothing wrong, like staff and visitors will not walk any distance. I am the type of person who will walk when well and take the stairs not the lift etc. I joined the Ramblers in the summer and look forward to returning asap, l very much enjoyed both the company and the lovely walks.

p.s I managed to get to Esk hause which is on the way to Scafell Pike in the Lake District back last September, 4 months after completing last lot of chemo. Hope to attempt this again later this year. Hence l was so shocked when offered a blue badge!

[Petrolhead]

Hope all goes well and keep focusing on the end result- holiday !

Best wishes

Fay

[Caleda4]

Thinking of you,and wishing you well with your treatment. Keep that holiday in sight use it as a target. xxx

[Lind58]

Sounds like you’re a strong lady, and I hope this time keeps the beast away forever! Look forward to the time away with your husband to come.

[delia2]

I admire your attitude and hope all goes well. Xo

[Maus123]

Sending many good vibes and the best of luck for this treatment round. Let us know how you get on. <3 your positive attitude and the wonderful sense of humor that shines through your posts.

And yes.. what is it about donkeys? I find them irresistible too . XX. Maus

[Yoshbosh]

Sorry you have ended up back on treatment. I’m on carbo/gem too at the moment. I’ve had it before and it’s not too bad. If you do end up needing a port, please don’t be afraid of it - several of us on here have one (including me), and almost all of us are glad that we do.

Thinking of you,

Vicki x

[Birdsong222 in reply to Yoshbosh]

Thanks Vicki that all sounds positive. Stay healthy.

Sylvia x

[LittleSan]

Good luck with your carbo/gem. My neuts took a hammering so week 2 was dropped after cycle 3 but it did a good job for me. Xxx

[Birdsong222 in reply to LittleSan]

That's really good to hear. I hope it starts to work soon, as this time l have been in a lot of pain from the tumour on my liver. So waiting for that to shrink to be pain free again. Forwards we go. Sylvia x

[Purple-iris]

So sorry that you are back on treatment but it sounds like you are in good hands with your team. Wishing you minimum side effects and before you know it you will be on that holiday. Joining the ramblers sounds a great idea. I love walking our rescue dog and it’s been great for my mental as well as physical health. The odd stressful walk where he gets lost chasing squirrels but mostly stress free !

Love and best wishes Kim x💜

[Birdsong222 in reply to Purple-iris]

Thank you Kim. I would love a dog again. Maybe in the future. Sounds like yours is full of life. Good thing is they make you go out, even in the rain! take care

Sylvia x

[Hidden]

Good luck with the new treatment

[JulieP1986]

Sylvia, You sound so positive, despite your set back, long may this attitude keep you soldiering through. I have an appointment next week, to the day 12 months since my last chemo. I am hoping and praying for a further NED outcome. I have no reason to doubt this result and hope my positive outlook serves me well too. Good luck with your ongoing treatment and a return to normal life ASAP. xx

[tara108]

Thinking of you. I am just getting my hair back for 2nd time and looks like I am going to be back in treatment soon! Too soon. But I've had a wonderful Summer and been away 3 times so I am lucky. Sending big hugs from Australia.

[Birdsong222 in reply to tara108]

Oh Tara that must be a huge disappointment. Well done for living life and enjoying your time, now it sounds as if you have to grit you teeth and get back on the treadmill. Stay strong girl you can do this. Sending you lots of luck. Sylvia X

[Katiebairdie]

I’ve just started my fourth line on carbo only. I’m going to ask about gem as well.

Hope your treatment goes well.

[Birdsong222 in reply to Katiebairdie]

Thank you. Good luck with your next treatment. Sylvia x