Tomorrow I will be NED for five years. Cause to celebrate yes, but I have been overwhelmed with emotions that have brought all that experience back again. I suddenly am questioning whether I am really still ok, will I know if I am not, do I celebrate or is that tempting fate! All very weird and totally unexpected! Thinking
it might be something to do with 5 years being a target and of course bring signed off from hospital. Thinking of you all undergoing treatment and wishing you all well but wondering why I am being so flakey now!!! Val
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valeriel
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I understand this reaction...I was recently informed that my suspected recurrence was a false alarm-good news you might think? But I was more spooked by it than I had been by the original thought that the cancer was back. I developed a pain in my side which I assumed was a cancer symptom and found it difficult to share my good news with friends and family..all I think because I felt I might jinx it somehow!
Very odd... but I do understand why you feel like this- it will pass and you will get used to being a five year survivor xx
5 years is amazing, and brings so much hope to me and all those here who are suffering or their loved one is suffering. Celebrate in any way that makes you feel happy. Because you are very blessed and lucky! To think you have overcame this beast and god willingly it will stay away forever, you are truly very lucky! Do whatever it is that makes you happy! I admire your strength
I think for all of us it's hard to even say how long we've been NED without adding a 'but' to the answer. We know recurrence is possible no matter how many years we check on the calendar. But I fully intend to continue celebrating every milestone! Hugs to you! Open the champagne and throw the glitter! It's awesome!
congratulations !!!! with mum recently diagnosed you give us hope!.. Lots of people have told me that once people are in good health they leave these groups...but you give people hope xxxxxxx
Hi Val, I know how you feel, I'm off to the hospital for my results today, if clear that will be me clear for 5 years after 2 recurrences from original diagnosis 10 years ago. I think it's having that safety net possibly removed. For me, I certainly wouldn't have been aware of the recurrences as I had no symptoms and minimal increase in bloods. I guess we just keep our fingers crossed for all of us!
Hi Lind, all clear! Bit sad as prof is retiring, and she has seen me through this last 10 years. Plan is to have bloods done in 6 months, if they are marginally up (over 12- I have really tiny increases) have a CT, otherwise annual CTs till year 10 NED. I think it's because it's clear cell, and apparently I'm an anomaly 🤔 there's no guidance, so they can check as necessary.
Long live anomalies, and let's have more of them I say!
This does give us hope! I agree with the others. I'm working on two years NED and have run into physical difficulties lately that I think could be more from all the chemo than anything else. My scans are clear and numbers remain low. Still, reading how you have made it to the 5 year mark is a great achievement! So, celebrate! And know that we will all be doing the same with you. And . . . when we reach that mark, we celebrate, too! Blessings.
I know exactly how you feel Val. I'm the same. I've got my appointment next month and was diagnosed in 2013 with stage 3C. I'm still on a trial so extended hospital visits. I worried as well as if no symptoms last time how will I know if it's come back. I've asked my doctor if he'll do regular CA125 tests to settle my mind a bit and he's agreed. That's made me feel a lot better.
Have a word with your doctor I'm sure they'll help you out.
Congratulations on the good news. All will be fine. Best wishes, Zena xx
Great news- definately celebrate! I guess you are feeling out on a limb a bit now though. Hopefully they will still be giving you blood tests at least?
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Maus
Happy New Year
Half of the mad family. 
10 Year Survivor
