Give year wobble!

[valeriel]

Tomorrow I will be NED for five years. Cause to celebrate yes, but I have been overwhelmed with emotions that have brought all that experience back again. I suddenly am questioning whether I am really still ok, will I know if I am not, do I celebrate or is that tempting fate! All very weird and totally unexpected! Thinking

it might be something to do with 5 years being a target and of course bring signed off from hospital. Thinking of you all undergoing treatment and wishing you all well but wondering why I am being so flakey now!!! Val

[Lindaura]

Dear Val,

Thank you so much for posting!

Good news is always welcome.

Please do not get yourself worried about tempting fate. Just keep on doing what you’re doing, because it is obviously working for you.

Meanwhile, even though you have made the 5 year milestone, will you continue to get a yearly blood test at least?

Keeping tabs on your CA-125 is something your GP can do and it’s a lot better indicator of your health than waiting for symptoms.

Fingers crossed, you will never have any more symptoms, but keeping on top of things with your GP seems like a wise course.

Best wishes,

Laura

[Caroles1]

Hi Val,

I am 4 years and plan to do something on my 5, it’s not tempting fate, it’s just a recognition of all you have been through and how brave you are.

I also look at it as a tribute to those lovely ladies that didn’t make it, who were so brave too and would have loved to have reached 5.

The whole experience is flipping emotional and there isn’t a lady on here that doesn’t know how you feel.

We deserve a tribute to ourselves and a thought to all the ladies who passed and who are still fighting.

Carole xxx

[Joanie12]

Fantastic news Valerie may your good health continue for years to come! Go and celebrate, you've earned it!!

[Lyndy]

Hi Valeriel

I understand this reaction...I was recently informed that my suspected recurrence was a false alarm-good news you might think? But I was more spooked by it than I had been by the original thought that the cancer was back. I developed a pain in my side which I assumed was a cancer symptom and found it difficult to share my good news with friends and family..all I think because I felt I might jinx it somehow!

Very odd... but I do understand why you feel like this- it will pass and you will get used to being a five year survivor xx

[Lind58]

5 years is amazing, and brings so much hope to me and all those here who are suffering or their loved one is suffering. Celebrate in any way that makes you feel happy. Because you are very blessed and lucky! To think you have overcame this beast and god willingly it will stay away forever, you are truly very lucky! Do whatever it is that makes you happy! I admire your strength

[grammeejill]

I think for all of us it's hard to even say how long we've been NED without adding a 'but' to the answer. We know recurrence is possible no matter how many years we check on the calendar. But I fully intend to continue celebrating every milestone! Hugs to you! Open the champagne and throw the glitter! It's awesome!

[LittleSan]

Just enjoying your good health is a good enough reason to celebrate in itself. 5 years is very significant. We all love good news. 👍🎉💐😘

[claireRoberts76]

congratulations !!!! with mum recently diagnosed you give us hope!.. Lots of people have told me that once people are in good health they leave these groups...but you give people hope xxxxxxx

[ladygooner-uk]

Hi Val, I know how you feel, I'm off to the hospital for my results today, if clear that will be me clear for 5 years after 2 recurrences from original diagnosis 10 years ago. I think it's having that safety net possibly removed. For me, I certainly wouldn't have been aware of the recurrences as I had no symptoms and minimal increase in bloods. I guess we just keep our fingers crossed for all of us!

Good luck, and we'll blooming done!

Sue

X

[Lind58 in reply to ladygooner-uk]

How did it go today?

[ladygooner-uk in reply to Lind58]

Hi Lind, all clear! Bit sad as prof is retiring, and she has seen me through this last 10 years. Plan is to have bloods done in 6 months, if they are marginally up (over 12- I have really tiny increases) have a CT, otherwise annual CTs till year 10 NED. I think it's because it's clear cell, and apparently I'm an anomaly 🤔 there's no guidance, so they can check as necessary.

Long live anomalies, and let's have more of them I say!

Take care ladies

Sue

X

[Lind58 in reply to ladygooner-uk]

Great to hear! Long may it continue! ❤️

[Yoshbosh in reply to ladygooner-uk]

Wow! So you are 5 years clear despite two recurrences? That’s brill! Vicki x

[ladygooner-uk in reply to Yoshbosh]

Hi Vicki, yes, last recurrence was in 2014.

[julia8163]

Enjoy every moment of being well. It very positive for all of us to read good news. Well done.

[ARamage]

This does give us hope! I agree with the others. I'm working on two years NED and have run into physical difficulties lately that I think could be more from all the chemo than anything else. My scans are clear and numbers remain low. Still, reading how you have made it to the 5 year mark is a great achievement! So, celebrate! And know that we will all be doing the same with you. And . . . when we reach that mark, we celebrate, too! Blessings.

[ShropshireJo]

Congratulations Valerie. Fantastic news. Definitely a good reason to celebrate. You can always keep your fingers crossed metaphorically 🥂🍾🥂

[ZenaJ]

I know exactly how you feel Val. I'm the same. I've got my appointment next month and was diagnosed in 2013 with stage 3C. I'm still on a trial so extended hospital visits. I worried as well as if no symptoms last time how will I know if it's come back. I've asked my doctor if he'll do regular CA125 tests to settle my mind a bit and he's agreed. That's made me feel a lot better.

Have a word with your doctor I'm sure they'll help you out.

Congratulations on the good news. All will be fine. Best wishes, Zena xx

[Maus123]

Still five years, and you could have US or ca125 cbecks at your gp or gynae, if that restores the safety net to a degree. Keep going. Maus

[Neona]

Great news- definately celebrate! I guess you are feeling out on a limb a bit now though. Hopefully they will still be giving you blood tests at least?

[Yoshbosh]

Wonderful news, Val. Cherish this news and embrace the future! We all understand why you feel wobbly, though. Vicki x