Histology Report

[Lymetree]

Well my histology report has come back indicating that the prime site for my mucinous cancer is the small intestine. It then spread to my left ovary which appeared to be the primary site on the CT scans? Obviously it wasn't. I am now being transferred from my breast/gyni oncologist to a bowel cancer oncologist. I was told by my MacMillan nurse this morning that they don't normally do debulking ops for small intestine cancer? However i ended up with a complete blockage and was told i would not have lasted more than two weeks without an op?! I cant imagine they would have done nothing under the circumstances?! So I now have a stoma and appear to have been debunked slightly by mistake?! Obviously I have a lot of questions to ask when I see my new oncologist.

Maureen

[Yoshbosh]

Good luck with it, Maureen. I hope that your new oncologist is able to offer lots of support for your change in diagnosis. Vicki x

[Lymetree in reply to Yoshbosh]

Thank you. Because a biopsy showed my cancer to be mucinous, I pushed my oncologist to have bowel chemo's which work much better for this type of cancer. Unfortunately I was ignored and given standard carbo and Taxol. By infusion 3 they had stopped working. I wonder now how much further forward I would be if I'd been listened to?!

Maureen

[Lily-Anne]

You’re in a similar situation to someone I know. Diagnosed with OC but it turns out it started in the small bowel. She’s staying with the gynae who is also my gynae Apparently he does bowel too but said it’s unusual because she is in her 30’s. She has two tiny children. They were going to strip her lining but chemo did the trick for now. She’s in remission

I thought that was quite positive good luck

LA xx

[Lymetree in reply to Lily-Anne]

Thanks for your reply. Cancer of the small intestines is also extremely rare. Apparently only approx 1,500 people get such a diagnosis in the UK each year. That also means little is known about it such as causes?

Maureen

[Stephywephywoo in reply to Lymetree]

Hi did they not check the small intestine when they did your debulking surgery ?

Also have you had a gastroscopy?