Zejula

[Elfed]

Well I took my first zejula 300mg yesterday evening, went to bed and couldn’t sleep, not because of insomnia, but that other side affect they don’t put on the list, paranoia. Laid there waiting for a second head to grow or my stomach to internally combust. Eventually went to sleep waking regularly to check for another head. Then woke at 4.30 and decided to see the blood red moon happening in England, so in the garden, minus 4, in my fluffy dressing gown and Rudolph the red nose reindeer slippers trying to make a tripod with flower pots and twigs to rest my camera on, my husband appeared at the door, looked and said “Crazy woman, obviously no side affects then”

1 day gone, thousands more to go (hopefully)

Hope you’re all doing well, keep fighting and keep enjoying everything in life 👍👍👍

[Solange]

Love it - super sense of humour!! Had a very wakeful night myself and can't believe I forgot to look for the moon event. All those wakeful, boring wasteful hours and I could have, hopefully, seen it.

Sending you best wishes for a good response with Zejula.

Love, Solange 😊

[LittleSan]

I started Zejula on Thursday night and have had disturbed nights but have been able drift off again. Have also had a stitch-like heartburn.

I'm kicking myself for missing the blood Red moon.

Here's to many, many more days on Zejula. Xx

[shortfriend]

Love your post. It really cheered me up and made me laugh. Hope the Zejula gets better for you. Please keep posting!

Love

short friend xx

[ShropshireJo]

What a lovely sense of humour you have. I’ve been on Zejula (Niraparib) for four weeks now and had very little sleep for the first week. Glad to say, that side effect has eased for the moment. I feel very fortunate to be given this drug. Fingers crossed it gives us all some extra respite from chemo. All the very best. Jo 🌺🌼🌸🌻🌹

[Juleswhee]

Hi , that’s funny , I do keep waking on zejula but get back off again .Did get up at 2.30 and 3.30 to look for the red moon but it was white , obviously too early .Sad I missed it .x Julia

[ShropshireJo]

Well that didn’t last long. Ten minutes after I posted, the chemo day centre rang to say my platelets are very low. I’ve got to stop taking it for the moment until my blood recovers and have daily blood tests. ☹️ Very impressed by their speed as I only had bloods taken at 8.40 and had the call about 90 mins later. Jo xx

[Seasun36-uk in reply to ShropshireJo]

Hi Jo, that was quick! Impressive! Don’t forget about papaya tea/fruit xx

[Lindaura in reply to ShropshireJo]

The dosage for Zejula has not been standardised, but recent studies show that bloods side effects are greatly lessoned by lowering the dosage to 200 mgs and that we do just as well at keeping cancer at bay.

So, hopefully that will be the next step.

Enjoyed your crazy post though!

Best wishes for a modified dosage,

Laura

[Seasun36-uk]

Was the red moon impressive?? Hope you get on well today/tonight.

Linda x ✨🌟🌔

[Elfed in reply to Seasun36-uk]

It was pretty good but froze my bits off. I’ve been fine today, long may it last. Hope you’re doing ok?

[Irisisme]

😂😂😂😂oh, Elfed, you made me laugh. Thank you. Seriously though, you make sure you tell your oncology team the drug is making you do & think weird stuff - whatever will you try next!

Lots of hugs,

Iris x

[Elfed]

If anyone’s on a parp inhibitor and aren’t already on it, there’s a great site on fb called parp inhibitors, I’ve found it really good

[jools53]

How funny start mine tonight,feeling very apprehensive,just praying I can stay on it with not to many side effects xx