Well I took my first zejula 300mg yesterday evening, went to bed and couldn’t sleep, not because of insomnia, but that other side affect they don’t put on the list, paranoia. Laid there waiting for a second head to grow or my stomach to internally combust. Eventually went to sleep waking regularly to check for another head. Then woke at 4.30 and decided to see the blood red moon happening in England, so in the garden, minus 4, in my fluffy dressing gown and Rudolph the red nose reindeer slippers trying to make a tripod with flower pots and twigs to rest my camera on, my husband appeared at the door, looked and said “Crazy woman, obviously no side affects then”
1 day gone, thousands more to go (hopefully)
Hope you’re all doing well, keep fighting and keep enjoying everything in life 👍👍👍
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Elfed
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Love it - super sense of humour!! Had a very wakeful night myself and can't believe I forgot to look for the moon event. All those wakeful, boring wasteful hours and I could have, hopefully, seen it.
Sending you best wishes for a good response with Zejula.
What a lovely sense of humour you have. I’ve been on Zejula (Niraparib) for four weeks now and had very little sleep for the first week. Glad to say, that side effect has eased for the moment. I feel very fortunate to be given this drug. Fingers crossed it gives us all some extra respite from chemo. All the very best. Jo 🌺🌼🌸🌻🌹
Hi , that’s funny , I do keep waking on zejula but get back off again .Did get up at 2.30 and 3.30 to look for the red moon but it was white , obviously too early .Sad I missed it .x Julia
Well that didn’t last long. Ten minutes after I posted, the chemo day centre rang to say my platelets are very low. I’ve got to stop taking it for the moment until my blood recovers and have daily blood tests. ☹️ Very impressed by their speed as I only had bloods taken at 8.40 and had the call about 90 mins later. Jo xx
The dosage for Zejula has not been standardised, but recent studies show that bloods side effects are greatly lessoned by lowering the dosage to 200 mgs and that we do just as well at keeping cancer at bay.
😂😂😂😂oh, Elfed, you made me laugh. Thank you. Seriously though, you make sure you tell your oncology team the drug is making you do & think weird stuff - whatever will you try next!
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Results from CA125 tests
First chemo
3rd treatment of caelyx
