Just a quick update, my special person is home finally, if I physically come across that registrar I will kick him in the nuts! She didn’t have another scan in the end as her bowels started moving and the pain went, although it took for her doctor to release her hence my wanting to kick the registrar if he pulled his finger out a bit quicker she’d have been home quicker, but she’s there now so life can return to normal! Xxx
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CallmeMum
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Thrilled she’s back home and hope she stays there for as long as possible, try not kicking the doctor I’m sure prison food isn’t very nice. Hugs to you both ❤️Xx Jane
I’m off to Disneyland with my daughter so will have some “me” time she’s saying she’ll be keeping up with her new regime, hopefully it lasts she’s now under T&C’s! How are you, haven’t seen you here for a while xxx
DisneyLand! That is going to be wonderful time for the two of you! Our closest here is in Florida and I'm really wanting to go!
I have been busy with work and trying to hang on to Zejula Parp. I had a little pity party for myself. Don't know why, but, just flipped because my CA125 went up slightly while on it. I just have to believe we are all doing all that we can for ourselves and just keep moving forward. I have been reading that the outlook does look brighter for many as there are so many new treatments available. It just boils down to how each person chooses to live their life out.
Have fun in DisneyLand!!! England? I'm so uninformed or forgot whatever it was that I knew. lol.
Gotta go to Paris but will be worth it as I’ve never been before! My special person was on Zejula/Niraparib for 11 months but now she’s classed as platinum resistant so unfortunately it’s only Caelyx from next week but hopefully it keeps her going for a little while longer, however we know it’s heading towards the “sorry there’s nothing else we can do for you” so keeping it real xxx
Fun! Paris AND Disney! You will LOVE it! Well, what you are doing is living it up with your daughter and that's the way it should be. I believe in miracles and the sacredness of life....wishing you both great things ahead...smiles, laughter and just pure fun!
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