Stage IIIc High Grade Cancer

[ladyt53]

Hi Everyone,

Just want to know if anyone has taken Cisplatian after Avastin?

My friend needed to stop taking her 1st line and moved to Avastin for the last few months ( maybe 3). Now her CA 125 is at 1700 and she just started taking Cisplatin.

Any ideas-workds of wisdom would be greatly appreciated.

Thanks

[Hidden]

Hi there sorry about your friend, it would appear that different doctors in different countries have various protocols. It would help if there was a one treatment for all but we are all different. I wish your friend well on the new drug, unfortunately I have not had this one yet.

[julia8163]

Hi, I was on avastain and it stopped working. I am starting cisplatin next Monday , I live in ireland. We will be able to help each other along on our journey. Stay positive .

[ladyt53 in reply to julia8163]

Thanks. You will be in my thoughts.

[Katmal-UK]

Hi, yes Ive had cisplatin. I have to say its harsher than carboplatin but totally doable and it 'did the trick' for me twice, the first time I swapped from carboplatin to cisplatin on cycle 3 after having an allergic reaction to carbo, then for my second recurrence I again had cisplatin and after 3 cycles I was NED, though I continued to have all 6 cycles. Tell your friend not to suffer with nausea, make sure she gets her antisickness meds sorted. I ended up on cyclizine, the only thing that helped xx Good luck to you friend xx Kathy xx

[ladyt53 in reply to Katmal-UK]

Thanks

[harpist_UK]

I have had 5 lots of cisplatin as part of the Rotterdam regime (see my profile) - it is working. Well covered with anti-sickness meds. It makes me very exhausted and gives a nasty, dry mouth, but apart from that I've coped and, more importantly, it is working!

[ladyt53]

Thanks so much. She just had the treatment Monday but was feeling very ill yesterday and believe in some discomfort.

Wishing you well on this journey--it's a lot.

I have so much respect for the fight!