CA125

[ZenaJ]

I feel it looks as if I'm rubbing it in for the poor ladies that are not so lucky at the moment but I also want you all to know it's possible to do well with stage 3C. My CA125 results this week remain at 7. It's been that for 4 years now. I feel so guilty for the ladies that are not so lucky.

[gmc920]

That is fantastic! Please don’t ever feel guilty about sharing great news— it’s wonderful and gives us all hope! 💕🎉

xx Gina

[ZenaJ in reply to gmc920]

Thank you Gina xx

[Hidden]

I feel the same Zena, but we shouldn’t ever not write positive news, because it shows people hope. It doesn’t change how much we care about our struggling teal sisters, we care very very much.

Well done, long may it last

Marian xxx

(17 months clear with 3c and trying to catch you up)

[ZenaJ in reply to Hidden]

You'll do it Marian, you sound a positive person. I don't know why some of us do and some of us don't. I wish I had a magic wand. I feel so lucky. xx

[avid]

Do not fee guilty good news is always welcome.

[Yoshbosh]

Wonderful news!! Long may it continue, Zena xxx

[ZenaJ in reply to Yoshbosh]

I do hope so. xx

[Cropcrop]

We’re really fortunate to be able to share good news and hopefully give hope to lots of other ladies. Congratulations on the low CA125, (same reading as mine for the last 3 years incidentally). Long may your good health continue, think a little 🥂is in order for you ❤️Xx Jane

[ZenaJ in reply to Cropcrop]

Had 3 gins and tonics, Jane. Congratulations on your news also. It feels good doesn't it. xx

[ShropshireJo]

Really good to hear your positive news. Thank you for sharing it with us. Jo 🌸🌼🌺🌻🌹

[Lizz49]

Thanks for sharing such positive news Zena and please don’t feel guilty about sharing it, it certainly gives hope to someone like me only diagnosed in February stage 3b and looking for stories like yours every day! I only hope I can follow in your footsteps 🤞am so glad of your good health and sending you lots of best wishes and hugs,

Liz Xx 💖

[ZenaJ in reply to Lizz49]

Thanks so much Liz. There are lots of us out here that survive. I think some leave the site when they need no more help but I do want to give others hope. Wishing you all the best. xx

[WoodyB in reply to ZenaJ]

Please please don't leave the site, as so many on here need to know the good stories and not just the bad. Do you take any medicines or supplements you think may be helping you?

[ZenaJ in reply to WoodyB]

Thank you so much. I can't say I do take anything unusual. I take zinc and a vitimin D3 tablet and calcium but otherwise just live a normal life. I try to eat healthily but that goes out the window sometimes. I think it's different for each of us. I don't drink tea or coffee and no milk but I love yogurt. I use soya milk a lot. I don't think there's anything unusual in all that.

I think I'll be on here a long while. I have many friends I like to keep my eye on.

Wish you all the best. xxx

[grammeejill in reply to Lizz49]

Lizzy, I am 3b Fallopian Tube cancer and will celebrate 3 years since diagnosis with no recurrence in early September. You'll do it, too! Jill xxx

[Lizz49 in reply to grammeejill]

Thank you Jill, I really hope so!! Get my final scan results next week I’m praying for NED 🤞🤞🤞will let you know!! Xx

[ZenaJ in reply to Lizz49]

Let us all know please xx

[Juleswhee]

Fantastic news , never feel guilty about sharing , we need the positive stories to keep us going xx

[ZenaJ in reply to Juleswhee]

Didn't really think of it that way. I've just read a few sad stories that make me feel so useless. Best wishes, Zena xx

[Trossyann]

Thats great news Zenaj its always nice to see good news gives me some hope as i wait for my op and outcome

Take care tracey xxx

[Hidden]

I don’t post much either as I feel guilty too. But like you said it gives hope to others too.

I’m really pleased for you. Fabulous news. X

[ZenaJ in reply to Hidden]

Thank you, Laurel. Everyone needs hope. xx

[Hidden]

That's great news - we all need the positive to cling to especially on "down" days. Thank you for sharing. Lyn x

[ZenaJ in reply to Hidden]

Thank you Lynn xx

[Hidden]

No because good news gives us all a well needed lift, so well done and we always have to have hope

[ZenaJ in reply to Hidden]

Thank you xx

[Lyndy]

Loving the good news ZenaJ long may it continue x

[ZenaJ in reply to Lyndy]

Thanks Lyndy xx

[Katmal-UK]

Fantastic news! Trust me I know how you feel about feeling guilty, to the point I actually considered leaving the site but part of me thinks me doing well shows what can be possible. Still undecided but still here... Well done xx

[ZenaJ in reply to Katmal-UK]

I agree Katmal. We all like to hear good news. I'm not sure why we feel guilty giving it. Stay on the site as long as you can. It is upsetting sometimes to read what people are going through but at least we can try to support them. xx

[Nancy222]

Please don't ever feel guilty for giving us good news. Please. Don't. It means so much to us all. XXOO

[ZenaJ in reply to Nancy222]

Thanks so much Nancy. I'll give all the good news I can from now on. xx

[Hidden]

Zenaj, great news and never feel guilty telling us, it gives hope to everybody. Sometimes it can be difficult to hear all the hard stories so we definitely need to hear the good ones.

Wishing you all the best for a full recovery long-term as we all strive for. Enjoy.

[ZenaJ in reply to Hidden]

I'm with you there. I always hope for good news for everyone. I wish I could do something for them or have some idea why some make it and others don't. It's all so random.

I hope you are one of the lucky ones doing well. xx

[Hidden in reply to ZenaJ]

Zenaz, I have had a number of reoccurrence and just finished chemo this week hoping to get back living again. I am 11.5 years on the journey but hope eventually to beat it. I have had 8 years without chemo prior to this. So I feel I got a good result last time. Wishful thinking but it's the only way to live.

[ZenaJ in reply to Hidden]

I agree, you have to be positive. After all we could get anything. Things happen all the time. You've done really well there's no reason why that shouldn't continue.

I wish you all the best, Zena xx

[Hidden in reply to Hidden]

Good luck and I really hope you get a long remission again, each recurrence is a shock to the system. But we get through it

[March2017]

Don't feel guilty, it gives the rest of us hope! Very pleased for you 💞

[ZenaJ in reply to March2017]

Thank you so much xx

[babyboy1]

Great news Zena! We NEED the POSITIVES! Keep on SHARING!!XXXDAWN!😀💗😀🌺

[ZenaJ in reply to babyboy1]

Thanks Dawn. xxx

[27-359]

Don't feel guilty. News like yours makes me feel there is hope for all of us. I have my check up later this month, and the stress levels are already rising!

Jenny

[ZenaJ in reply to 27-359]

I wish you well Jenny. It's always the same when appointments are coming up. I don't think that'll ever change. As long as there's good news in the end.

Best wishes, Zena x

[Suzanne333]

Hi Zena.

Don’t feel guilty.

That’s bloody brilliant and it does give us hope.

You keep going lovely lady.

Big hugs xxxx

[ZenaJ in reply to Suzanne333]

Thanks Suzanne, I just wish it could be the same for everyone. xx

[Peg8080]

That is such wonderful news Zena! 🎉💕Thank you for sharing with us! It gives us all hope! Now celebrate! 😊

Peggyxx

[ZenaJ in reply to Peg8080]

I will, thanks Peggy. xx

[January-2016-UK]

That’s great news. 🍾🍾🥂 hope you celebrated.

[ZenaJ in reply to January-2016-UK]

Certainly did and will every day I think. xxx

[KBM22]

That’s brilliant news. This site is amazing in that people celebrate the good news and show such support and advice for those not having such a good run. There’s a lot of love so don’t feel guilty And I think all of us definitely want to know that there are some of us beating this evil thing! X

[Lewisriley47]

Brilliant news l am sure that's all we love to hear x

[Ge0rg1na]

That's really great and thank you for still being a part of this forum. This disease has so many ups and downs but the upside is that your treatment worked so I'd like to think that it is being recorded somewhere within cancer research meaning that future generations will benefit. Full marks to you for sharing and for celebrating xx

[Nancy222 in reply to Ge0rg1na]

I agree! Can you imagine this forum without good news to help us on our journey? It would be so bleak.

[ZenaJ in reply to Ge0rg1na]

Thank you so much. I'm on a couple of trials so hopefully you're right and it will help some ladies in the future. I hope you are doing okay. xx

[Ge0rg1na in reply to ZenaJ]

Yes on the whole I've got a few weeks without too much medical interference. My CA 125 went up 200 points for a couple of weeks but is down to 58 now. They don't know why so I try to ignore it and just get on with life as I'm feeling so much better. I'm on trial and enjoy the support and reassurance that someone, somewhere will benefit from my history. Off to a party now. Enjoy every moment, that's my motto xx

[ZenaJ in reply to Ge0rg1na]

You have a great time at the party. I've just had a couple of rums with my friend. I do everything I can possibly do. There's people at my age that are a lot worse off. Enjoy life. xxxx

[grammeejill]

You know, if you ever read past posts from say, 6 years ago, you may wonder where those folks are now. I think we assume because they aren't posting that they are not doing well or have passed on. In truth, I think they are thriving and have MOVED on. And I sure would love to hear their stories of successful treatment to inspire hope. YOU are doing just that, ZenaJ, giving us more will to fight and look forward to a normal existence. So congrats a bunch! And, trust me, we are so happy for you!

[ZenaJ in reply to grammeejill]

That's so kind. I have thought of leaving the site as it can be very upsetting but those ladies have fought the same as the rest of us and I'm sure there are many out there that are surviving and living a good normal life. I like to think so anyway.

I hope you are doing well. Best wishes, Zena x

[Katsmum]

Great news Zena , this is what we love to hear🥂🍾

[ZenaJ in reply to Katsmum]

Thanks, I just we could hear it a bit more often. Hope you are well. xxx

[Michelle-WSx]

Lovely to read a positive story ZenaJ.

I was 3b and just finished chemo and surgery and finding it hard to get concrete information about recurrences like where and when ?

Just had post treatment scan and bloods

Pre treatment bloods were Ca125>5000

Last one was 42 before last two chemos.

Can I ask if you were NED after chemo ??

Michelle x

[ZenaJ in reply to Michelle-WSx]

Yes Michelle, at my first 3 month appointment after chemo my CA125 was 7/8 and has remained at that with NED. I had a very good surgeon. At the time I didn't even know if that was good or bad and asked if it went up to 12 what would happen. I was told they'd have to look into it. Seeing others with CA125 well into the thousands that sounds ridiculous now. I had chemo weekly for 18 weeks. It was a trial. Whether that has made any difference I have no idea. They never give the results of trials.

Your CA125 is coming down nicely so it all sounds it's going the right way. Best wishes with it, Zena xx

[Michelle-WSx in reply to ZenaJ]

Thanks ❤️

[Deb52]

I love to hear good news so keep it coming! I’m waiting to hear my latest CA-125 results. Unfortunately it has been climbing lately but has still been under 100. I’ve been on avastin and doxil but if these results are still climbing I may have to go back on taxol and carbo. ☹️

I wish you continued good results!

Deb

[ZenaJ]

Thanks Deb, I wish the same for you. xxx

[IrishMollyO]

Zena

Your good news is so important to us so keep it coming. It gives us all such hope. We need those hopeful stories so don’t go away ! Long may you stay well !

XXX

💚💕

[ZenaJ in reply to IrishMollyO]

Thanks very much. I'll be around for quite a bit longer if I've got anything to do with it. I wish you all the best, Zena xx

[Chickysha]

Don t feel guilty about doing so well,if certainly gives me hope stage 3C. You must be delighted,go girl! X

[ZenaJ in reply to Chickysha]

I am Chickysha, I do just wish everyone was the same. There must be something that's different. It's just finding it. There's lot of us that do get through it and they'll be many more. All the best, Zena xx

[Maus123]

No feeling feel guilty, please, Zena. Just enjoy being cancer free.

Friends and family don't always get the anxiety hitting us around scan/blood time, and the profound emotional impact of the results.

But we do. It's a great result for you :). xx. Maus

[ZenaJ]

Thanks Maus xx I feel guilty for feeling guilty now with all the lovely comments I've had.

I hope you are doing well. Zena xx

[Hopefulgal1]

Another well done from me!! I second all those comments too: please do t feel guilty as it gives everyone such encouragement that we can survive!! And thank you - we love a good happy story x

[ZenaJ in reply to Hopefulgal1]

Thank you xx

[mummybear59]

Fab news. Xxx

[CJR99]

Fantastic news Zena and long may it continue xxx

[Jo-Jo1-UK]

Totally agree with all the lovely comments, it’s great to hear your doing so well Zena. I love to hear the good news stories as it’s really uplifting and being the the same stage as yourself it does give me hope for the future. I’m 2 years clear so far so🤞. Wishing you all the very best and hoping it stays at bay! Keep us posted! xx 🍀

[ZenaJ in reply to Jo-Jo1-UK]

Thank you. You are doing really well too. Long may to be that way. Live every day. xx

[Maxjor]

Can't imagine the feeling of 4 years but that is so WONDERFUL!!! Always share good news. It really is needed and always gives hope. May NED stay with you always. oxoxoxo

[ZenaJ in reply to Maxjor]

Thank you very much. You'll know how it feels soon. The time goes by so fast. Sometimes I forget I ever had cancer and think it was a dream or should I say nightmare. All the best for your future. Zena xx