I feel it looks as if I'm rubbing it in for the poor ladies that are not so lucky at the moment but I also want you all to know it's possible to do well with stage 3C. My CA125 results this week remain at 7. It's been that for 4 years now. I feel so guilty for the ladies that are not so lucky.
CA125: I feel it looks as if I'm rubbing it in... - My Ovacome
CA125
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ZenaJ
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That is fantastic! Please don’t ever feel guilty about sharing great news— it’s wonderful and gives us all hope! 💕🎉
xx Gina
I feel the same Zena, but we shouldn’t ever not write positive news, because it shows people hope. It doesn’t change how much we care about our struggling teal sisters, we care very very much.
Well done, long may it last
Marian xxx
(17 months clear with 3c and trying to catch you up)
Do not fee guilty good news is always welcome.
We’re really fortunate to be able to share good news and hopefully give hope to lots of other ladies. Congratulations on the low CA125, (same reading as mine for the last 3 years incidentally). Long may your good health continue, think a little 🥂is in order for you ❤️Xx Jane
Really good to hear your positive news. Thank you for sharing it with us. Jo 🌸🌼🌺🌻🌹
Thanks for sharing such positive news Zena and please don’t feel guilty about sharing it, it certainly gives hope to someone like me only diagnosed in February stage 3b and looking for stories like yours every day! I only hope I can follow in your footsteps 🤞am so glad of your good health and sending you lots of best wishes and hugs,
Liz Xx 💖
Thanks so much Liz. There are lots of us out here that survive. I think some leave the site when they need no more help but I do want to give others hope. Wishing you all the best. xx
Please please don't leave the site, as so many on here need to know the good stories and not just the bad. Do you take any medicines or supplements you think may be helping you?
Thank you so much. I can't say I do take anything unusual. I take zinc and a vitimin D3 tablet and calcium but otherwise just live a normal life. I try to eat healthily but that goes out the window sometimes. I think it's different for each of us. I don't drink tea or coffee and no milk but I love yogurt. I use soya milk a lot. I don't think there's anything unusual in all that.
I think I'll be on here a long while. I have many friends I like to keep my eye on.
Wish you all the best. xxx
Lizzy, I am 3b Fallopian Tube cancer and will celebrate 3 years since diagnosis with no recurrence in early September. You'll do it, too! Jill xxx
Thank you Jill, I really hope so!! Get my final scan results next week I’m praying for NED 🤞🤞🤞will let you know!! Xx
Fantastic news , never feel guilty about sharing , we need the positive stories to keep us going xx
Thats great news Zenaj its always nice to see good news gives me some hope as i wait for my op and outcome
Take care tracey xxx
I don’t post much either as I feel guilty too. But like you said it gives hope to others too.
I’m really pleased for you. Fabulous news. X
ZenaJ in reply to
Thank you, Laurel. Everyone needs hope. xx
That's great news - we all need the positive to cling to especially on "down" days. Thank you for sharing. Lyn x
ZenaJ in reply to
Thank you Lynn xx
No because good news gives us all a well needed lift, so well done and we always have to have hope
ZenaJ in reply to
Thank you xx
Fantastic news! Trust me I know how you feel about feeling guilty, to the point I actually considered leaving the site but part of me thinks me doing well shows what can be possible. Still undecided but still here... Well done xx
Please don't ever feel guilty for giving us good news. Please. Don't. It means so much to us all. XXOO
Zenaj, great news and never feel guilty telling us, it gives hope to everybody. Sometimes it can be difficult to hear all the hard stories so we definitely need to hear the good ones.
Wishing you all the best for a full recovery long-term as we all strive for. Enjoy.
ZenaJ in reply to
I'm with you there. I always hope for good news for everyone. I wish I could do something for them or have some idea why some make it and others don't. It's all so random.
I hope you are one of the lucky ones doing well. xx
in reply to ZenaJ
Zenaz, I have had a number of reoccurrence and just finished chemo this week hoping to get back living again. I am 11.5 years on the journey but hope eventually to beat it. I have had 8 years without chemo prior to this. So I feel I got a good result last time. Wishful thinking but it's the only way to live.
ZenaJ in reply to
I agree, you have to be positive. After all we could get anything. Things happen all the time. You've done really well there's no reason why that shouldn't continue.
I wish you all the best, Zena xx
in reply to
Good luck and I really hope you get a long remission again, each recurrence is a shock to the system. But we get through it
Don't feel guilty, it gives the rest of us hope! Very pleased for you 💞
Great news Zena! We NEED the POSITIVES! Keep on SHARING!!XXXDAWN!😀💗😀🌺
Don't feel guilty. News like yours makes me feel there is hope for all of us. I have my check up later this month, and the stress levels are already rising!
Jenny
Hi Zena.
Don’t feel guilty.
That’s bloody brilliant and it does give us hope.
You keep going lovely lady.
Big hugs xxxx
Thanks Suzanne, I just wish it could be the same for everyone. xx
That is such wonderful news Zena! 🎉💕Thank you for sharing with us! It gives us all hope! Now celebrate! 😊
Peggyxx
That’s great news. 🍾🍾🥂 hope you celebrated.
Certainly did and will every day I think. xxx
That’s brilliant news. This site is amazing in that people celebrate the good news and show such support and advice for those not having such a good run. There’s a lot of love so don’t feel guilty And I think all of us definitely want to know that there are some of us beating this evil thing! X
Brilliant news l am sure that's all we love to hear x
That's really great and thank you for still being a part of this forum. This disease has so many ups and downs but the upside is that your treatment worked so I'd like to think that it is being recorded somewhere within cancer research meaning that future generations will benefit. Full marks to you for sharing and for celebrating xx
I agree! Can you imagine this forum without good news to help us on our journey? It would be so bleak.
Thank you so much. I'm on a couple of trials so hopefully you're right and it will help some ladies in the future. I hope you are doing okay. xx
Yes on the whole I've got a few weeks without too much medical interference. My CA 125 went up 200 points for a couple of weeks but is down to 58 now. They don't know why so I try to ignore it and just get on with life as I'm feeling so much better. I'm on trial and enjoy the support and reassurance that someone, somewhere will benefit from my history. Off to a party now. Enjoy every moment, that's my motto xx
You know, if you ever read past posts from say, 6 years ago, you may wonder where those folks are now. I think we assume because they aren't posting that they are not doing well or have passed on. In truth, I think they are thriving and have MOVED on. And I sure would love to hear their stories of successful treatment to inspire hope. YOU are doing just that, ZenaJ, giving us more will to fight and look forward to a normal existence. So congrats a bunch! And, trust me, we are so happy for you!
That's so kind. I have thought of leaving the site as it can be very upsetting but those ladies have fought the same as the rest of us and I'm sure there are many out there that are surviving and living a good normal life. I like to think so anyway.
I hope you are doing well. Best wishes, Zena x
Great news Zena , this is what we love to hear🥂🍾
Lovely to read a positive story ZenaJ.
I was 3b and just finished chemo and surgery and finding it hard to get concrete information about recurrences like where and when ?
Just had post treatment scan and bloods
Pre treatment bloods were Ca125>5000
Last one was 42 before last two chemos.
Can I ask if you were NED after chemo ??
Michelle x
Yes Michelle, at my first 3 month appointment after chemo my CA125 was 7/8 and has remained at that with NED. I had a very good surgeon. At the time I didn't even know if that was good or bad and asked if it went up to 12 what would happen. I was told they'd have to look into it. Seeing others with CA125 well into the thousands that sounds ridiculous now. I had chemo weekly for 18 weeks. It was a trial. Whether that has made any difference I have no idea. They never give the results of trials.
Your CA125 is coming down nicely so it all sounds it's going the right way. Best wishes with it, Zena xx
Thanks ❤️
I love to hear good news so keep it coming! I’m waiting to hear my latest CA-125 results. Unfortunately it has been climbing lately but has still been under 100. I’ve been on avastin and doxil but if these results are still climbing I may have to go back on taxol and carbo. ☹️
I wish you continued good results!
Deb
Thanks Deb, I wish the same for you. xxx
Zena
Your good news is so important to us so keep it coming. It gives us all such hope. We need those hopeful stories so don’t go away ! Long may you stay well !
XXX
💚💕
Thanks very much. I'll be around for quite a bit longer if I've got anything to do with it. I wish you all the best, Zena xx
Don t feel guilty about doing so well,if certainly gives me hope stage 3C. You must be delighted,go girl! X
No feeling feel guilty, please, Zena. Just enjoy being cancer free.
Friends and family don't always get the anxiety hitting us around scan/blood time, and the profound emotional impact of the results.
But we do. It's a great result for you :). xx. Maus
Thanks Maus xx I feel guilty for feeling guilty now with all the lovely comments I've had.
I hope you are doing well. Zena xx
Another well done from me!! I second all those comments too: please do t feel guilty as it gives everyone such encouragement that we can survive!! And thank you - we love a good happy story x
Thank you xx
Fab news. Xxx
Fantastic news Zena and long may it continue xxx
Totally agree with all the lovely comments, it’s great to hear your doing so well Zena. I love to hear the good news stories as it’s really uplifting and being the the same stage as yourself it does give me hope for the future. I’m 2 years clear so far so🤞. Wishing you all the very best and hoping it stays at bay! Keep us posted! xx 🍀
Can't imagine the feeling of 4 years but that is so WONDERFUL!!! Always share good news. It really is needed and always gives hope. May NED stay with you always. oxoxoxo
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