Hi there - almost everyone here is monitoring/ being monitored for CA125 levels. In my 1st oncologist appt he told me 'we don't do that here - we work on symptoms'. It is really worrying me that I won't know how my levels change through my treatment stages and will have nothing concrete to keep an eye on? He tells me CA125 can give so many false positives and lead to unessessary treatment - my cynical self says 'is this a Scottish NHS cost cutting measure?' My symptoms were so nebulous - and some can't return because of the hysterectomy so I worry that I would miss a reoccurence until it's well advanced Any thoughts welcome ladies.
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