My Ovacome
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Thank you for your replies Re turmeric

Thank you so much everyone for all of your replies about brands of turmeric and ways of adding it to my diet. I was also really interested in the link to the website about risks and benefits. That was brilliant. My onc team continue to pooh pooh the idea of health benefits but your replies have confirmed to me that there is something in it. My only concern at this point is the potential risk with oestrogen based cancers. I will look into this and post anything I find. Thank you so much again everyone. Once again your support has been amazing. Sian xx

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Sian, how do we know if our tumours are/were oestrogen sensitive? Is this tested for routinely? Have you ever asked our Oncologist? Linda xx

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I 2nd under the impression that all ovarian cancers were oestrogen related. I could be wrong but I thought I had been told this at some point . I hope you are feeling better and over your horrible cold

Sending lots of love x

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Hi both,

Not all tumours have oestrogen receptors (ER) only. There is usually a mix of progesterone in there too (PR). A pathology report on a biopsy usually gives percentages for both and it helps to determine whether hormone therapy would be suitable and which type to give at the time or in the future. The lymph on my side contained 98% of cancer cells with oestrogen receptors and zero for progesterone. I've got a copy of the pathology report. I think it's best if you have some PR's as the two hormones together can hinder the growth of the cancer cells. I'll be interested to know what you find out about turmeric and us ER girls, Sian.

Now my hair is growing back I've noticed I have hair on my face, my leg hair is thicker and I've got odd hairs poking out around my nipples now and then (horror of horrors!) Perhaps I've started to produce some progesterone. I wouldn't mind, but for all the right reasons - not the hairy ones. When I get the urge to buy a socket set or start shaving my chin, then I'll worry... :-)

Keep well. Love and hugs xxxxx

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That made me giggle kryssy. I'm sure the beard oil is a long way off. You've certainly given me some food for thought. I'll try to find out whether my tumours have oestrogen receptors. I'll keep you posted when I find out any more.xxx

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❤️❤️❤️

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I don't think so. I had the impression they were tested for it.

Certainly some years ago I asked my oncologist, a propos HRT. And in view of the fact I'd had Triple Negative BC (i.e.not oestrogen or any of the other known drivers). I'm sure I was told it wasn't ER+.

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It is not tested for routinely. You will probably need to ask (depending on where you live). Or, the other thing they might do is test your biopsy samples. You can check it with your oncologist if you think it is important. They should do it more really, but I guess it’s expensive?

Nicky xx

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Thanks Nicky. So much to learn. I tried to watch the BBC documentary featuring yourself but it said it wasn't available? I tried a couple of times. Was part of it about self-funding for 'preventative' PARP drugs? How do you find out about that....I don't want to wait til my 3rd recurrence, if you see what I mean....if at all poss. Perhaps it is very expensive...(& ER testing). We are so fortunate on the whole with the NHS & I am very grateful. Linda x

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Hi

I did try this but spent most of my time on the loo so gave up. Funnily enough my daughter who lives in Australia tried it and had the same reaction. Maybe a family thing the two of us with sore backsides in no time - ouch.

Good luck

Maureen xx

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Hi Maureen, how did you take it? In what form?

You might need to take curcumin instead.

Nicky xx

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Hi

I took Natures Best Tumeric 10.000mg high potency standardised at 95% curcumins. Any advice will be welcome.

Thanks Maureen xx

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I love this post. You made me giggle xx

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Hi Sian,

I have done a lot of research on supplements and had done pretty excellent results with them. ( along with acupuncture and some Chinese Medicine).

I explained much about the changes in my ca125 and the supplemts I took, all on my profile page if you look. It might help you. I also avoided oestrogen-based medications so I have looked into that also.

I hope that helps... and good luck.

Nicky xx

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