My Ovacome

It’s Back

Just got results of my PET scan. I now have evidence of recurrence in the pelvic lymph area, small bowel and now “close” to the liver. No surgery this time around. I was told to call my oncologist today to get in there sooner than later. I am once again very angry but now numb. I hate to be negative but how much more can we take? I hate to put my family and friends through this although I know I have no control over it. I am assuming six more rounds of chemo and play the waiting game is what I can expect. This is my third battle in six years having been diagnosed in 9/12. For those of you who have already been down this road, I applaud you and pray for you. For those of us who are starting new battles I pray as well. For those who are in remission, please enjoy every day that you are free of this monster. I will say it because I know we all think it. Why and it’s just not fair. I am still processing but I will try to be positive once I know what lies ahead. Keep fighting and God Bless us all.

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I usually don’t pray, but I will pray for you . You sound like a brave person so keep on fighting. The monster can be defeated. 🤞🏻🧡

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Thank you. I will keep reminding myself of your words. God Bless.

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Get that appointment with your onc quickly. You may be offered immunotherapy or a trial with few dude-effects. Fingers crossed.

Best wishes

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Thank you! I will take care of that today. I am hoping that this time around the chemo won’t be as bad but who knows. I was thinking about asking about immunotherapy. God Bless!

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Hi. I found a recurrence harder to accept than the original diagnosis, I think it's because having got into remission the fact that it came back was such a blow after the op and chemo. Having said that what I will say is that having had 2 recurrences I am now enjoying my longest remission (hopefully I haven't just jinxed myself) and I wanted you to be aware that it can be achieved. I wish you well xx Big hug, Kathy xx

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Thank you for that information. It is very optimistic news and I will keep this in mind. Good luck to you as well. Thank you for reaching out.

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I’m in a second recurrence - sitting in chemo now for the 2nd dose of my first round. Angry is good. I’ve been thoroughly miserable for weeks now and can’t snap myself out of it although today I did want to scream and shout and punch pillows which is a slight improvement on my mood. You can do this (ironic words I know from someone who is so meloncholy!) but really, deep down I know I can do it as well, I just don’t want to!!! I’m sure you will feel better once you know what the plan is. Take care

Becky xx

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Be angry, shout and scream and punch pillows. It's good for the soul. x

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Thank you for understanding. You share my mother’s name. She passed at 53 of breast cancer. God Bless you.

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Sending love & prayers. You will get your second wind, you have already done so much xx 🌟

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Thank you so much. God Bless you.

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Once you get all the information, it should be easier to plan. I know it's difficult, but try not to think of the impact on your family. Your post shouts strength.

You've got this.

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Thank you so much. I am slowly telling my loved ones and feeling better. Like you said getting the plan together.

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However you’re feeling right now, you sound a strong minded lady. This bl**dy disease creates such a mixture of emotions in all of us. It’s a roller coaster ride. I’m waiting for my three monthly scan results again and trying hard not to think the worst. Sending you love and very best wishes Jo 🌻🌼🌺🌹🌸

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Thank you for your kind words. I am accepting my situation and trying to get my support team in line. God Bless you. Praying for you. 🌷🌸🌹🌺

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Hi , So sorry to hear you have a recurrence that is the problem with this beast it keeps coming back I've had 5 different treatment in 3 years as soon as I go off chemo it rear it ugly head.

At the moment I'm trialing a new drug this is not chemo I had to go off chemo to go into this trial and my 125 is going up. If successful this drug will make cancer more sensitive to chemo I have 2 more to go then we will try chemo I'm find this drug harder then chemo, last treatment I had diarrhea with vomiting at the same time.

How great if this drug works it's being trial in 3 hospital here in Australia and 2 in the USA

As you said I'm sure you will feel more positive once a treatment plain is in place.

Take care Lorraine xx💙💙

ovariancancernewstoday.com/...

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Sending prayers xx

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Thinking of you and sending a big hug. 🌸. Love & prayers Carolyn x 🌷

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I’m so sorry to hear your news and it sounds like like you are still in shock. I had the exact same feeling after my recurrence last year. It felt almost worse than the original diagnosis, I think because you go through so much to get rid of it?

One thing I would say: have they given you a reason for no surgery??

You will have a much better outcome if they manage surgery before you start chemo again. This is very recent research.

When mine came back 12 months ago, I was told the same as you. So I sought a second opinion in London ( for what I hoped might be immunotherapy or similar) but the consultant there said surgery then chemo would be far better. I met with their astonishing surgeon ( have you seen the BBC documentaries on her?) and she operated.

If it had not been for that team and a different suggestion of surgery first, I very much doubt I would be here now.

I am doing pretty well in their eyes, I am also now taking a PARP inhibitor which I championed for.

There are ore options available to you. My advice would be to have second opinion in London. Email me if you need anything.

Don’t give up. I nearly did. But a year later I am around and pretty stable.

Love Nicky xx

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I was diagnosed with recurrence five days before Christmas last year. I have my coat on and on my way for my 3rd chemo. It saved my life five years ago and it will this time. Family and friends are everything but the people on this site are something else. Good luck and lots of love xxx

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Hi there, it may seem odd but soon you will somewhat come to terms with your 'new but unplanned life'. A recurrence leaves you reeling and raw but somehow we pull up our brave girl pants and face the situation. Praying for strength and love and for you to be back to good health.

Sandra 💐 x

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I was also told that surgery was not an option but through my GP sought a second opinion at Queen Charlotte's Hammersmith, West London. And I went ahead with the surgical option and then had six cycles of carbo/Caelyx. I am now on maintenance Letrozole. There are options out there.

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How strange I have been told I have reoccurrence to pelvic lymph nodes, vaginal vault and ct showing irregularities at top of liver. Onc has ordered a pet scan to see if liver lights up before deciding on treatment plan.

I have taken the news quite hard and the waiting is horrendous, I just want to get on with whatever they are going to throw at me. I will keep you in my prayers as I do all my teal sisters and sending you virtual hugs.

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This disease is mental torture. I am sorry to hear your news. I will find out on Monday what awaits me. By any chance, do you also have a nagging cough all of a sudden? I am sending you prayers as well. Thank you!❤️🌷🌹😢😡

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I was so sick of it all after 4 rounds of chemo in 6 years, that for the 5th I told almost no-one and just tried to get on with it. I found that surprisingly easy. It might be just me or that chemo but each line I've had has seemed easier than the one before (even while I'm fuming about needing to spend my time that way). I don't know how much this is true or real or a kind of "if I'm going to be living with this on and off treatment stuff , I can't let it take over everything". Minds and bodies, eh. Who knows? I don't do praying, but I'll be thinking of you both and hoping when you start it will be better than feared. Hang on in there! x

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Thank you. I am feeling better now. I am using the anger to push me forward. I am hoping that I do not lose my hair this time around. I will keep you in my thoughts and prayers.

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