I was right 😒

[Beckyjh]

So - fears confirmed. CA125 rising starting chemo again immediately. This time carbo/gem combination - anyone able to tell me what to expect? Time to go home and face the long day of telling everyone again. I don’t need to tell any of you ladies how much I really hate this disease right now.

[Yoshbosh]

Ach, Becky 😕 Sorry to hear this. Having to tell people is so hard - you have your own emotions to deal with, without having to deal with theirs too. Can someone else do the telling for you? I did a few phone calls and sent an email to everyone else.

As for carbo/gem - I’ve just finished this and have found it loads easier than carbo/taxol. No hair loss and minimal other side effects. I think I’ve been quite lucky as I know others have found it harder than me. One thing I will say is that my onc and I agreed from the outset that we’d skip the day 8 gem top-up (my bloods had struggled under carbo/taxol), and the regime had still (🤞) been doing the trick for me.

Do you know when you will be starting?

Vicki x

[Beckyjh in reply to Yoshbosh]

Probably in about 3 weeks.

[Etakeloop]

Just been through the telling people again today too. Its not any easier the second time around. Good luck to you

[Katmal-UK]

Awww Becky, hearing news of a recurrence is hard as well as having to tell people. Carbo/Gem is totally doable. As Vicki says easier than Taxol with the added bonus that you get to keep your hair or though if I recall mine did thin slightly. I had Carbo/Gem (swapped out the carbo to cisplatin because I became allergic to the carbo but all in all it went as well as can be expected and having had it twice (two recurrences) it did the trick. Best wishes. Kathy x

[dryden1]

Can,t say how sorry I am to hear this. What a bloody awful disease this is. Sorry cannot give you any words of wisdom about the proposed chemo I can only wish that it work .s with the minimum of side effects. THinking of you. CHRIS

[Travelmonster]

Really sorry to hear this Becky, I haven't experienced carbo/gem, but just wanted to send a big hug.

Paula

xxxx

[Cropcrop]

Bugger! Sorry your worst fears are confirmed but from what the other lady’s have said the new regime isn’t too bad so I truly hope it’s that way for you too.

It’s rubbish isn’t it having to tell your nearest and dearest and try to care for everybody else’s feelings at a time like this when I’m sure all you want to do is scream but it’s part of what we do 🤨 I hope it goes as well as it possibly can for you.

Take lots of care, we’re all here for you, hugs and love ❤️Xx Jane

[January-2016-UK]

Sorry your fears were realised. I've not had carbo / gem but Understand that the regime is quite well tolerated.

Thinking of you; if is difficult telling everyone, especially when you're still coming to terms with matters yourself.

All the best

Helen

[Alifit]

Oh pooh! I’m all for an exciting life, but sometimes we could do without the shocks this disease brings. I’ve no experience of the regime you’re heading for, but have a suspicion I’ll be heading that way soon as my CA125 is now 290.

It doesn’t sound too harsh from what the other ladies say, but best of luck anyway.

Love, Ali x

[Lyndy]

Oh no.... I am sorry Becky, that is pants for you...sending a big hug x Lyndy

[ShropshireJo]

Echoing all the messages so far and sending you love and hugs. You WILL get through this. jo 🌸🌺🌼🌹🌻🌸🌺🌼🌹🌻

[ssjmichael]

I'm sorry to hear that Becky. My mom very likely has a recurrence, and her doctor will also be putting her on Carbo/Gem whenever they officially declare that it's back. I was initially taken back by the choice of Gemzar, as I figuted she'd choose Taxol instead, but I am hearing good things about Gemzar, and how well it's tolerated, etc...

As for telling others, Just an hour ago,, my mom kind of avoided a friend at the meat market today because she didn't feel like having to go through explaining that it's back, etc.. at that time. That can be overwhelming on top of everything else, so just remember to breathe, and tell people at whatever pace you're comfortable with.

Hugs, and Support,

Michael

[Jessica-DianeB]

Sorry to hear this Becky. You are absolutely right, we understand x x x x

[Suzanne333]

So sorry your fears are confirmed. It is so hard telling others. It’s soooo disappointing going onto chemo yet again. You’ll feel better once you start chemo probably. You’ll feel it’s being dealt with and it’ll get under control again.

It’s so difficult telling others as you know they’re going to feel gutted for you and so worried.

We are all behind you. Big big hugs xxxxx

[Manyin52]

So sorry to hear your news x telling family and friends is one of the hardest things to deal with.

Sending love and big hugs xx🌸🌺🌹🌼💐

[Nicky100]

Oh I’m so sorry to hear this. It sounds like you have strong intuition if you knew something was not right. At least, I suppose, you have been tested, hopefully early enough. But so understand your stress.

Do you have someone that could share the news for you? I think it’s quite important, as having to manage everyone else’s reaction just now may wear you out and you need to rest.

I am hoping they nail it for you and you get back on top of things soon. Ive not had this combo of chemo but Vicki below has I think.

I’m sending you love, Nicky xx

[Cheryl4677]

So sorry to hear your news. This constant fear of recurrence and further treatment is so difficult to cope with. Telling others is the hardest part. Fingers crossed for you. X

[Maxjor]

Sorry to hear it Becky but I almost find the appt that confirms the fears worse--especially because my family knows my fears before the confirmation then they hear it! But I am IN treatment now and I have to say because I had the experience before, life goes on and and as long as its working, life goes on with appreciation! I hope you get some of that feeling too and it does the trick with few to no side effects! ox

[Ge0rg1na]

I had carbo/gemcitabine together with Avastin back in 2015 and it kept my particularly virulent disease away for 2 years, which, for me, is a long time! I found the whole regime pretty tolerable but I'm now on weekly Taxol and I find that even easier, despite the hair-loss. But we're all different so I wish you the best of treatments and Spring will be here soon to make life sweeter!

[lorraine71-Australia]

Hi Beckjh, I just would like to add my my best wishes to you, it is hard to tell our friends and loved ones but I'm sure they will be there for you and of course we are here too...Lorraine xx