This is my first post but I've been reading your stories since May when my Mum was first diagnosed. She's now had x6 first line carbo/taxol and today we went to get the results of her latest scan. We have been previously told that she has reacted well to chemo and her CA125 is down to 13.
We have been told that surgery is not an option and never will be due to the 'spread' of Mum's cancer across her peritoneal. What I don't understand though is that other women with PPC are given surgery. PPC in it's nature means there isn't necessarily a mass to remove like in the case of OC therefore his explanation didn't really clear things up.
As is stands Mum's chemo is dormant and she's been put on 'watch and wait' with her next appointment booked in for three months. I'm looking into getting a second opinion, however she's being treated at The Christie which is a centre of excellence so can I still push for one?
Today we didn't see the consultant and the person who delivered the news wasn't in the MDT meeting. I felt like he wasn't giving us specifics into Mum's situation and he was quite vague. We now have a lot of further questions and have no idea what to do going forward.
I can't rest until I've tried everything. Can anyone give me any advice? I'm so upset that Mum hasn't made it to NED. Do most people make it to NED after first line? I feel like the outlook is totally bleak as it's just a case of waiting for it to become active again.
Thank you in advance x