Scared!

[Buttons-557]

So Confused, I need some advice. I have ovarion cancer-stage 1C-was wondering why they didm't push chemo? I also had (thyroid cancer, ) still monitoring that 7 surgeries later. I'm so nervous about ovarion cancer resurfacing, I need advice from my warriors! Thanks luv for listening! Had a total hystorectmy April 7th,2017.

[lorraine71-Australia]

HI, I can not speak from experience but my understanding of why you have not been offered chemo for C1, it's up to your oncologist if he or she feels you should have chemo arfter surgery but becourse C1 is low grade and not spread chemo is not necessary, but in saying that some oncologist will give chemo just to mope up any spotting.

When is your next appointment ? you need to ask this question if only to put your mind at rest.

I'm hope one of the ladies on here will be able to give you more information from experience.

You sound like you have been through a lot with your thyroid cancer. so can understand you don't need the added stress..take care Lorraine xx

[Petrolhead in reply to lorraine71-Australia]

Lorraine

The guidelines in Aussi are probably different to the UK. As has been said NICE guidelines state that stage 1C and above should be treated with chemo. Until those national guidelines are changed then any treatment offered which is outside those guidelines should be fully explained and justified with the option of being able to have treatment if wanted.

Fay

[lorraine71-Australia in reply to Petrolhead]

HI Fay, I agree with you all treatment should be fully explained, as we can see by the replies to Buttons post, some ladies with C1 have not had chemo,

as Di said it could depend on the type of OC.

Cheers take care Lorraine xx

[Howick01]

I would definitely question that as the guidelines state chemo for 1c onwards.

They might have a reason for not giving you the chemo but you should know the reason why.

Take care x

[Di16]

Sometimes it also depends on the type of OC you have. Mine was 1c at diagnosis, & I was told that it wasn't considered necessary for me, and that chemo tended not to work very well with my particular type of oc (gct).But as has already been said, it's best to ask your oncologist the reason for the decision for you personally. Di

[cherylm1964]

Please talk to your oncologist but I was in the exact same situation. Do you know what grade/type of oc you have? If your oc is low grade, chemotherapy is often not recommended. In my situation, I was Stage 1C but with grade 1 clear cell. After my surgeries (I had 2), all my pathology came back negative. My oncologist felt that chemotherapy wasn't needed: 1) because I was currently NED, 2) low grade cancer doesn't respond as well to chemotherapy as well has more aggressive cancers, and 3) chemotherapy works best the first time it's used, so if she had ordered it prophylacticly, it wouldn't be available should I have a recurrence.

I hope this information is somewhat reassuring that your situation is not unusual. Please speak to your consultant or nurse.

C xxx

[Petrolhead]

Hi

I had stage 1C low grade mucinous oc. My oncologist “suggested” watch and wait. Treatment for my sort can be 70% resistant to treatment. But as the C part of staging means that some cells might have escaped. Even the thought of one cell escaping was iffy to me I was referred to RM for a second opinion. The consultant agreed with me that treatment (for mine) was in order. Also agreed on a monitoring regime which was vital for my peace of mind.

The fact that it could be largely resistant means that 30% could be effective and this might make the difference if cancerous cells had/have escaped.

This was right for me. Treatment is not easy and will probably have side effects which I have had.

You need to research and decide what is best for you. Consultants do not make it easy. They will give options but you have to decide. Best of luck and let us know how you get on and what you decide.

Fay

[Buttons-557]

When you say treatment is not easy if I decide-please be more open with me if I decide to go that route. Luv you all, have appointment this Friday-will post, xxoo Thank you bunches!

[Sunfleury-UK]

Do you know the sub-type and grade of your Ovca? This may well be the key piece of information. Stage 1c can treated a bit differently depending on the sub-type, grade, country where you are & even the team/ hospital.... Some types of stage 1 are regarded as higher risk & as others have said some types are known for not respobding particularly well to chemo. All chemo is a balance between potential risk and potential benefit to the individual.

I find it helpful to write down all the questiins i have for my consultant beforehand... best wishes, Sx

Ps if you put '1c chemo' onto the search box, you'll likely find quite a few posts discussing the different treatment plans & decisions made

[triplets]

I was diagnosed last year stage 1c2 high grade and had 6 cycles of carboplatin to mop up as they said. In my case I had a large cyst that ruptured on the day of the surgery so they said the fluid could have carried cells around my body. So far still all clear but it worries me as it was high grade. Good luck. x