Results from scan carboplatin hasn’t worked. My diagnosis has changed now to low grade ppc.

[Zena41]

And now I am on hormone therapy , they don’t want to do surgery at this time.

Confused to say the least.

[ZenaJ]

Didn't they say when? xx

[Zena41 in reply to ZenaJ]

They said it was highly unlikely as too near to vital organs

[Yoshbosh]

That is confusing, Zena. Do you think your CNS might be able to explain what's going on? I hope you can get some answers soon xxx

[Zena41 in reply to Yoshbosh]

I know vicki I cried didn’t take anything in. My mum did.

My ca125 had gone from 111 too 140 after third chemo. And he said chemo hadn’t shrunk but this new therapy has good outcome.

[Zena41 in reply to Yoshbosh]

Nurse specialist wasn’t there today but he asks her too ring me x

[Yoshbosh in reply to Zena41]

Oh bless you 🙁 There are options out there for low grade, and there are a couple of trials too. I hope your CNS can help you more. Xxx

[Zena41 in reply to Yoshbosh]

Lol vicki I had just got my head around high grade, x

[valeriel]

Hi Zena Don’t give up asking questions until you know exactly what the plan is. Sometimes I think our specialists, despite working with so many people, don’t realise how difficult it is to deal with uncertainty. Having said that we are all living with uncertainty for the rest of our lives. I just think they should do all they can to reduce the stress that this causes. Hope you get an explanation soon about what is happening. Only then can you have a go at coping with it. My thoughts are good wishes plus a virtual hug are on the way. X

[Zena41 in reply to valeriel]

Aww thank you xx

[ScardyCat40]

I can’t believe it has taken them this long to diagnose you with low grade. I have low grade cancer it is more difficult to treat with chemotherapy because it grows more slowly. Did they say if you have been tested for oestrogen receptors? Please do ask if you have any questions. I am Stage IV but I have been living with it for 6 yrs

[Zena41 in reply to ScardyCat40]

Hello, the dr said my samples biopsies had been re examined by all MRI team and there scientists after recent reactions to taxol and caelyx also ca125 dramatically lowering but no evidence of shrinkage at all. ....

so the next step hormone therapy to stop feeding the cancer oestrogen also a tablet daily taxofen I think it is.

[ScardyCat40]

Tamoxifen fingers crossed it will work for you. You might feel a bit sick for the first few days and it will cause hot flushes and make you feel a bit dry down below. It might also cause some joint and muscle pain but it’s much easier to deal with than chemo

[Zena41 in reply to ScardyCat40]

Hi yes that’s exactly the symptoms the dr gave me

I had a hormon injection today in my stomach too. It began with z ? I will find out x

[Kryssy]

Hi darling.

You sound very down and upset about your news. I feel for you. Sending big hugs and love and never give up. We have a male friend been on hormone therapy for years and apart from getting tired now and then he's living life to the full. Be brave sweetie. Love Kryssy xxx

[Zena41 in reply to Kryssy]

Thanks lovely, I’m ok just a change in treatment I guess xx

[January-2016-UK]

I wonder if it might be an idea to seek a second opinion regarding the biopsy results. It sounds as if there is room for doubt regarding the diagnosis. It can't hurt even if the opinion is the same, at least you'll know you are now going down the right road.

[thomas62]

Hi Zena,

I would seek a second opinion on the issues you mention. Good luck.

Gwen xxx

[Emalou71]

I hope your CNS can help with your questions and get you some clarity on what has been thrown at you, maybe a second opinion could be an option?

Sending big hugs ❤️

[Kim1958]

So sorry to hear this Zena. I can imagine how confusing it all is. I find these appointments so stressful. I just don't get it!!! How did they manage to make an incorrect diagnosis? Hope you get some answers soon, and maybe a second opinion is warranted? Thinking of you......Kim xx