PET results. : Hi lovely ladies. Hope you are... - My Ovacome

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PET results.

Suzanne333 profile image
16 Replies

Hi lovely ladies. Hope you are all doing ok

Saw the Doctor. He said my scan lit up areas near the liver and around the bowel. On the peritoneum. Very small though. A teeny bit of my shoulder lit up too which confused them. Lol.

Watch and wait. See consultant in two weeks. Scan in two months. Chemo will be 3-6 months probably or before if I get symptoms.

What will it mean if it's recurred in the peritoneum?

Is that where it usually occurs?

Xxx

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Suzanne333 profile image
Suzanne333
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16 Replies
CALENA profile image
CALENA

The peritoneum is the thin membrane that surrounds our organs. It think because it is so large it is possible that it gets some cells. My main cancer was primary peritoneal which either spread to the ovaries or visa versa. My doctor did a oophorectomy (total hysterectomy) and omentum removal. There were some spots on the peritoneum which died from chemo and he removed surgically. I just had a scan which showed it recurring on my liver and my CA 125 was up to 477 after 12 in March 2017. I'm not sure what but maybe the doctor sees something new on yours. Relax until after your next consult. I'm seeking a second opinion next week to see if chemo AGAIN is what I need. I'll be thinking of you and sending prayers.

Suzanne333 profile image
Suzanne333 in reply to CALENA

Thank you. I'll be thinking of you too.

Keep strong xxxx

85live4ever profile image
85live4ever

Hi Susanne, I am confused why it would be in your shoulder I hope they can put more light on your results when you are seen again. Take care Cindyxx

Suzanne333 profile image
Suzanne333 in reply to 85live4ever

They seem confused too. They said it's probably nothing. Lol. Xx

MH500 profile image
MH500

Hi Suzanne

That's better news than expected?? The peritoneum is a common place for deposits but like they've said they are tiny so try to relax and go with the flow for now. If you haven't got to have chemo yet that's a good thing (the longer the better for good results).

I haven't been in here much lately but do think about you and just saw your last few posts. You are doing ok, you've got this

Hugs ....Marian xxx

Suzanne333 profile image
Suzanne333 in reply to MH500

Hi Marian.

Thank you.

It's not great news but it could be worse. I'm ok with it. I feel well and getting on with life.

I hope everything is ok with you. Xxx

Katmal-UK profile image
Katmal-UK

Hi Suzanna both my recurrences showed deposits on the peritoneum Chemo took care of it. xx

Suzanne333 profile image
Suzanne333 in reply to Katmal-UK

Hi

Aww thank you for your reply. I know how well you're doing so that makes me feel positive.

Hope you are ok.

Xxxx

Katmal-UK profile image
Katmal-UK in reply to Suzanne333

i'm doing ok, just waiting for scan results which I'll get next week .......

Suzanne333 profile image
Suzanne333 in reply to Katmal-UK

I will keep my fingers crossed for you. Let us know how you get on. Xxx

harpist_UK profile image
harpist_UK

Currently having chemo for peritoneal deposits (2nd line) - it's where my cancer originally spread to (apparently it can just go whoosh and peritoneum is where it likes to go) and, although 1st line cleared it and Avastin gave me time off, they told me it would come back there. Hopefully booting it out with chemo again. Yours are small and they will step in when action is required. Hope it goes ok. x

Suzanne333 profile image
Suzanne333 in reply to harpist_UK

Hi.

Thank you for your reply. It seems common for the nasty little disease to like to onto the peritoneum. I'll hold off chemo until I really need it.

Hoping you are ok. Xxx

harpist_UK profile image
harpist_UK in reply to Suzanne333

Half way through my chemo - CA125 going down. Very tired some days but handling it. Having a little holiday at the moment to celebrate the half way mark. :)

CJR99 profile image
CJR99

Thinking of you Suzanne so sorry I can't offer much advice but,just wanted you to know xx

Suzanne333 profile image
Suzanne333 in reply to CJR99

Thank you. Xxxx

HI Suzanne, I am on my 5th line treatment and each time I've had a scan it show up on the peritoneum, as Calena said it is the membrane that surround our organs and I think if I'm right can not be cut, on my scans it show that chemo helps in a positive way on the peritoneum deposits and it is good yours are small so hopefully the chemo will clear the peritoneum. Take care sending you my best wishes Lorraine💙💙

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