Scared and learning

[Tabbycat28]

I had a full hysterectomy Oct 16....CA125 test was 1770 before surgery and 6 rounds of chemo....now is 24....Diagnosed with stage 3 serous carcinoma. Seeing Dr every 3 months...is that normal?

[Choski]

24 is within the reference/ normal range. CA125 can be impacted by many other things but it's natural to worry.

If you have no symptoms then a 3 month check is the norm.

If you have symptoms then speak with your team about having a scan.

Generally it's three rises in a row and symptoms which would start action. ( of course if it went up dramatically a scan would probably be arranged quicker)

This new post op life can be hard to come to terms with. Every niggle worries us, we know CA 125 is impacted by lots of other things, including infections etc

BUT if you can't settle then give your CNS a call.

Thinking of you

Clare xx

[Tabbycat28 in reply to Choski]

Thank you ....it's been a long journey but I am grateful for every second I have with my family😄

[Yoshbosh]

That all sounds normal (and good) to me. Like Clare says, if you have any worries in between appointments, speak to your CNS and see if you can be brought back in for a review sooner.

[Tabbycat28 in reply to Yoshbosh]

Thanks...I get scared whenever I know the appointment is getting close. I am trying to learn to cope with my fears better.

[Yoshbosh in reply to Tabbycat28]

Me too! I've got my next review at the end of June and I know I'll be a bag of nerves by then!

[Biscuitqueen]

That's great news! You CA125 level is within the normal range - and the three monthly check-ups are normal Congratulations! It's not easy to deal with anxiety but I hope that you do well