Hi all, I haven't posted for a while but I do keep up to date and respond when I feel I can be of help.
I completed second line treatment last August. My CA125 was 23 at end of treatment, however it wasn't all gone. I'd had 11 tumours on commencement of treatment, I still had 5 at end, but they had all significantly reduced in size. I have been on watch and wait since then, well to be exact, I have been watching and waiting as I didn't get an appointment in December as was the plan. I've had to make various telephone calls but eventually got to speak to my new CNS a few weeks ago and updated her on my CA125 as done at GP surgery - in November 32.3, in February 85. I had a CT scan on Monday morning so now waiting for review with the consultant.
I'm off to Amsterdam on Friday morning for long weekend with 4 girlfriends and so looking forward to it. On 10th April, my husband and I are taking our 2 daughters, their husbands and our 4 grandchildren to Euro Disney for 5 days and nothing is going to stop me going! To cap it all off, Stuart and I have booked a holiday in New York in August with my cousin and her husband and I really want go go on that too. I even managed go get reasonable insurance for America through Boots.
I had an interview with the Belfast Telegraph last week and it was published yesterday so feeling pleased that I'm doing something to raise awareness. You can get it on line.
Yesterday I was looking after my little 22 month old granddaughter, Katherine. She is such a wee dote. She'll keep me fit, we were at Sunbeams, a mums and tots group in the morning which she loves, doing the Grand Old Duke of York, the hokey cokey etc.. After we'd had lunch she got up, started turning in circles and instructed me to do the same. If anyone had looked through the window they'd have thought I was nuts lol. To cap it off, when she was going home with her mum and older brother, I was instructed to 'chase the car' lol and I had to do it to please her lol. Stuart laughed when I told him I was chasing their car.
I hope you are all doing OK. To all our members from the island of Ireland, I wish you a very happy and safe St Patrick's Day for Friday. Ann xx