My Ovacome

Borderline kyste and hysterectomy and then remove more bits

I know that I have been lucky and should be gratefull but I have the feeling that I have not have all the necessary information. If the ovaries and trumps are in the uterus why not to remove the uterus with them at the same time and thus avoiding me to have another surgery in less than 3 weeks. If my kyste is borderline why should I remove every bit that is left? They said no chemio will be required because it's not cancer. There are contradictions on all of this or it's me that think too much?

2 Replies

Did you have keyhole surgery the first time? That may explain why you need another surgery. Are you 50 or over? It's usually the normal procedure to remove everything once you are that age or over to prevent possible future problems. It's also probably that the Pathology report from your first operation showed at that time that you had a Borderline cyst.

You need border lines cysts removing as they have a POSSIBILITY of becoming malignant at some time in the future. That's different from Benign cysts which will NOT EVER become malignant. So it's a safeguard.

There is a good fact sheet on the main OvaCome page that may help.

Take care



Hi Fantasia - welcome to the group. I'm sorry you've found yourself here and although I don't know much about your own circumstances, I can sympathise. I'm 34 and this year was diagnosed with a borderline mucinous ovarian cyst. I originally had the offending cyst removed, but after the pathology found it to be borderline, I had a second operation to remove my right ovary and fallopian tube and appendix. Had I been older (say mid-to late 40's, they would have probably taken everything). As I was staged 1a (i.e. the borderline cells were isolated to inside the cyst itself and hadn't spread) I also, did not need chemo.

As Clare has already mentioned, borderlines have the 'potential' to become malignant (also know as LMP's - low malignant potential cysts), unlike normal benign cysts and therefore borderlines (or LMP's) are generally treated more cautiously. If one of these borderline cysts are found in an ovary and you are post-menopausal or you are younger but have completed your family, they tend to suggest having a full hysterectomy in a bid to ensure your risk of reoccurrence is reduced dramatically. If, however, like me, you are younger (possibly circa 10 years from menopause) and haven't had children/finished having children, then they may choose more conservative surgery over complete surgery (they call it 'fertility saving' surgery), so as to not bring on surgical menopause or render a woman sterile, potentially unnecessarily.

I am sure that the route your medical team have taken is the right one for you, however, if you have any concerns, then you should be able to bring these up with your GP/Surgeon/Oncologist or seek a second opinion if you feel you aren't getting anywhere with them.

I wish you all the very best and hope you're having a peaceful festive period.

Jemima xx

1 like

You may also like...