Questions about Mum

[Emilysarah80]

Hi ladies. I've been logging on for a few weeks now, what a lovely board!

My mum was diagnosed with 3b back in august 2013. She had a full hysterectomy followed by carbo/taxol.

She recurred last January and has had six cycles of carboplatin and is now on Tamoxifen. The doctors were really pleased with her response to both treatments.

She had a scan in July and another in October and there had been no change. Her CA125 has crept up slightly but the oncologist didn't seem concerned and said they would only worry if it suddenly rocketed.

They've also told her that she had a couple of spots on her liver but these have been there all along and have never changed, again they don't seem worried about them.

She had some symptoms (sporadic colic pain) but the onc think these are from a double hernia operation she had a year after her diagnosis and left a lot of damage.

I just seem to spend by life in a constant worry about her! I'm worried they've missed something, every little niggle she has I'm worried is a symptom. I convinced myself she was jaundiced (I'm pretty sure she's not and again, surlely the onc would have spotted it the other week!). It's beginning to ruin the time I spend with her and I just wish I could take what the onc said and be positive as apart from being tired (which the onc says is the Tamoxifen) she is actually very well!

Sorry for the ramble! I just needed to get it off my chest!

[Shellygirl]

I don't think I'm speaking out of turn when I say all of us who have had oc feel the same way every pain etc we fear the dreaded beast coming back.... I too have something on my liver which I did not find out about till I was given ned... onc just said there is the lesion on your liver... I said what??? I did not know about that ... answer was it's benign why would I tell you... I was gobsmacked (Yorkshire saying) I could not believe that your dr would not tell you about something and then mention it in a matter of fact manner ... your mum is still fighting and it sounds like she's doing a good job... she has your support too which is amazing and will only help her to feel strong... you clearly have your mums best interest at heart and you can spot any signs of your mum becoming unwell ... your doing a great job ... it's so stressful and the journey is not easy for either you or your mum .... try to put your fears aside and enjoy your time together make memories ... all the best wishes for mums continued treatment ... big hugs ... sending positive thoughts and strength to keeping up the fight 💪🏻😍

[Emilysarah80 in reply to Shellygirl]

Thanks Shelly. She is a fighter and I feel she's at the start of a journey rather than the end but I can't help worrying (I'm a natural born worrier anyway!).

Hope you're doing well. X

[Shellygirl in reply to Emilysarah80]

Me too I worry ... I had to try to learn to let go of the things that I can't control as my worrying about them would not change anything... it's very difficult thing to do as i like to plan and be in control... oc takes that away from you to a certain degree as your life becomes all about the treatment... I have up days and down days it's a bit of a rollercoaster coping with cancer but I'm a true believer that if your positive then that's got to have a positive outcome 😃

[Hidden]

Sometimes it is harder for the carer than for the patient. You will have to take a step back and stop the worry, Think of the positives in your Mums life and focus on them. Perhaps you might like to ring the Ovacome Nurse for a chat or if there is a local Cancer Support near you, do go along, families are welcome as far as I know. You take every day at a time. Your Mum will feel tired for some time yet as it takes a while to recover from treatment. You can help her by less worry and perhaps offer to do some shopping housework etc. This way you are helping her.