I just wanted to share my mums journey. In 2010 my mum was diagnosed was with a 12cm clear cell tumour & had a CA125 of over 2000. She was 63 at the time. We were devastated with the diagnosis as we thought this was terminal. My mum was incredibly strong, hopeful & positive but I was terrified of what our future held. I found support on these type of forums & it got us through some very difficult times. I have wanted to post this for so long to offer others hope but I still carry the anxiety of it returning one day & tempting fate.
HOWEVER, 6 years later against the odds of her being diagnosed with the most aggressive form of OC she continues in remission & last month was discharged from her gynae team.
I hope this helps, for anyone else who is free falling in fear & horror of this awful diagnosis. We are thankful everyday & I pray for all the ladies & families going through the terrible time.
Sending love to all those involved in this awful illness.
Liz
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LizJones
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Hi Liz - thank you for sharing your Mum's story. What a wonderfully strong lady she sounds and I'm so pleased she's been discharged from her team and things are looking up! It's so lovely to read a good news story!
Hi Liz thank you so much for sharing your mums story. I was diagnosed advanced 3C OC last December and have never been so shocked to hear such devastating news. To read your story brings hope, joy and positivity to such a nasty disease. Love to you, your mum and family 😊xxx
Thanks so much for taking the time to tell us your Mum's story. It gives me hope and makes me happy. Am stage 4 and eight weeks into chemo, keeping positive and hoping for the best. News like this always helps! Wishing your Mum all the best now and in the years to come. Love Mary x
Hi Carol, yes she had a TAH, BSO, and omentectomy, this was then followed by carbotaxol chemo. She then switched gynae onc teams, as she came to live with me to recoup & the new team performed a second operation to do lymph node clearance.
Best wishes to you & your family.
Liz xxx
That is great news and very encouraging so wishing you and your Mum the very best,
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