Beva

[Annr5h]

Hi is anybody just having Beva every 3 weeks and suffering with lower back and pelvic ache. Finished chemo 6 weeks ago and I'm finding if I walk for more that 15 mins or stand for that time my lower back and hips start to ache.

Just wondered if it might be the Beva?

[SusanAM]

Hi

If you are talking bevicumizab (sp? ) or avastin I have been having foot nerve pain. There was some debate on the part of the doctors about whether this was a side effect. They now seem to be accepting that it is and I am on lyrica for the nerve pain. It is definately worth a discussion with your docs. The Mayo Clinic webite in the US has a list of potential side effects that I found more useful than the documentation I was given to look at to check and see whether my pain was a possible side effect.

Susan

[Annr5h in reply to SusanAM]

Thanks Susan for your reply x

[Lyndy]

Hi Ann

I completely agree that you should talk to your team about this but as a fellow sufferer of aches and pains while on Avastin, I have recently started attending gym sessions run by my local hospital and guess what?! Far from making the pain worse it has really eased it off. I was not expecting this at all but v gentle stretching might be worth a try?

L xx

[Hertsmum]

I'm on avastin and now getting fairly constant pain in left leg/hip and from what I read it's fairly common to get aches and pains on it. But I agree you should tell your oncologist about this. Interesting about the gym sessions helping Lyndy I might have to try it!

Madeline x

[Annr5h]

I'm starting aqua aerobics soon see if that helps. Seeing oncologist next Monday so will ask the question.

Thanks for your reply xx

[Hidden]

Yes you do get aches and pain when on Avastin part of the course, My left hip playing up a lot now finished Avastin a year ago and left it go for ages. So now facing the music as it were. I have had steroid inj in my hip and need another. One thing I would advise is have a bone density scan if you hadnt one in the past two years. I left mine go and now have osteopenia

[Janine57]

I am on Bevacizumab (am calling it Beva from now on, love it!) alone now every 3 weeks after having had it with my 5 out of 6 cycles of chemo. My final (18th) Beva will be in February. I am on the ICON8B trial. I was diagnosed with Stage 4 OC and PPC in December 2015 - currently NED. I am really achy particularly hips and neck. My oncologist sent me for an MRI which didn't show up anything other than expected wear and tear at my age (59). I have started Pilates classes which I'm hoping will help. Good advice to ask for a Dexascan.

Good luck everyone. Keep fighting this horrid disease and stay positive.

[Annr5h in reply to Janine57]

I was on ICON8B trial too ,well I still am as I'm on Beva until next July, had my chemo weekly finished chemo 6 weeks ago. I also like you had stage 4 OC, now NED may it continue. I wish you the same, and you stay in good health xx

[Janine57 in reply to Annr5h]

You must be on the arm of the trial I hoped to be on but I am on the control arm so had my chemo 3 weekly. I do feel privileged to be part of this trial as I feel the monitoring is very good and it's good to feel one is doing something to help others. Thank you for replying. So pleased you are NED - fingers crossed for the future xx

[harpist_UK]

I started on Avastin last Feb and have had 12 treatments - up to about a month ago I was really only troubled by stiff feet getting out of bed in the morning and a bit of plantar fasciitis. More recently my hips, bum and pelvic area have been aching - feels like I've been sitting on a hard seat for hours. There is no restriction in my movement or anything - have been doing Pilates and go walking regularly. I just ache sometimes. Onc said it would be from the treatment.