Hi, my name is Tania, I'm 38 and I'm waiting for a accurate diagnosis of what is believed to be a germ cell tumour. I have a 12cm mass on my right ovary, elevated levels of AFP (2.5) LDH (500odd), HCG (6.1) and ca125 216. I have enlarged lymph nodes in my aorto node (56mm), enlarged 4cm in left pelvis node, 22mm on my bowel.
I've been told this rare form of cancer is very sensitive to chemo but I need to get there first. I have waited 9 weeks as still have no answers from referral and only found out the above last Monday. I've chased and chased for my biopsy results which took them two weeks to decide to complete because of Bank a Holiday and a further two weeks to get the results in!
I am going tomorrow for the results unless they are inconclusive of course. My worry is that now I have enlarged nodes, it's advanced and whilst my ct shows clear organs (liver,lungs, stomach and omentum) this was 5 weeks ago and I'm going out of my mind to know the staging and start treatment before it gets to stage 4!
I have two kids aged 14 and 11 and a wonderful husband who experienced the loss of his mum to cervical cancer at 57. My family's experience of cancer is one of loss, pain and suffering and I'm the strong one who pulls us all through and now this. My kids and hubby may not be strong enough for this so I'm trying to hold it together. It would be good to hear others experiences for reassurance and I feel like they will let me die due to the delay for something I thought I'd caught early. I had no symptoms but had a car accident and had physio and felt hard in my stomach when I was laid on my front, a trip to the doctor to check said lump and here I am 9 weeks later! Thanks in advance for any replies. X