I am so sorry to hear of Annie's death. We corresponded on this forum a few times and I met her at a Target ovarian conference in manchester a few years ago. She was so dynamic and committed to ensuring fairness in treatment options for all of us in the UK. i also met Gwynn at that conference and feel really sad that they have both lost their lives too soon to this awful disease. They were both so supportive on here and in other places too. My thoughts are with their families and friends.
in sadness Francesca
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francescahannah
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Annie messaged last week to say that she knew it would only be a few days, so it wasn't such a shock. However I was very shocked about Gwyn, I had no idea she was so unwell. Two feisty ladies, who fought for what they believed in. There have been too many casualties to OC, scary times.
Annie also messaged me and said much the same but I kept hoping and praying that she would rally. I admire her courage in acknowledging that she thought that this was it.
Gwyn very often kept her suffering private .. she always said it wasn't about her but more about others ... Gwyn was selfless ..her concern for others was wonderful to see .. she wouldn't want me to praise her but praise she has got .. you knew her elsewhere LA, but still you didn't realise ..Gwyn was an awesome person in her breadth of spirit and in her capacity .. . I was blown away really xxx
I am also very sad to hear of the passing of Gwyn and Annie. Two very special ladies with such strength and inspiration. I've not had contact for a long time but they were there for me several years ago. Thinking of you Francesca and my condolences to their families Linda xx
Hi Julie, I'm not in a good place really. Feeling fairly well but as soon as I finished weekly taxol in august the CA 125 started going up again pretty fast. The Chemo did halt it and some of the liver lessons had shrunk a bit but I have still got some neuropathy.
Getting scan results today so dreading that.
On the positive side I've been able to enjoy life and we did get on a cruise in the med from Rome which was lovely. In a fit of bravado a couple of weeks ago I booked flights to Spain for us going tomorrow thinking that whatever the scan showed I wanted one last week of sun and sea but this morning wobbling especially as I've been getting twinges around my stomach and abdomen and got a very stiff neck and shoulder(probably tension).
So we'll see what happens later.
I've been really enjoying spending time with my 2 little granddaughters lily and Rosa. Lily is so cute now and just makes me giggle so much.
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