ONX-0801 Trial at the Marsden: Dear All. I am... - My Ovacome

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ONX-0801 Trial at the Marsden

gina profile image
gina
4 Replies

Dear All.

I am about to start this trial at the Marsden in Sutton if I pass all the Screening tests.

Are their any lovely ladies that are on or have been on this trial?.

Georgie x

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gina profile image
gina
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4 Replies
sharonforce profile image
sharonforce

Yes, I was on this trial from October 2014 to March 2015. Happy to answer any questions you may have

Best wishes

Sharon

gina profile image
gina in reply to sharonforce

Hello Sharon

Thank you for your reply.

How did you feel on this trial? Did it have any affect on your cancer?

I am really nervous about it. What treatment are you having now?

I would be grateful for any advice.

Best wishes Georgie from a sunny West Sussex.x

sharonforce profile image
sharonforce in reply to gina

Hi Gina

After four months on the trial ONX - 0801 anti-folate drug my tumours shrunk by over 30%. This was classified as a partial response and I was really pleased. Prior to starting the trial my tumours were growing and spreading very quickly.

I felt very well and had no side effects at all from the drug.

My CA125 before starting the trial was 351 and after four months it went down to 96.

However I didn't finish the whole six cycles as I developed a problem with my lungs (pneumonitis) caused by the drug. Also the drug had stopped working on the cancer. As soon as I stopped taking the drug the lungs improved and following a course of steroids my lungs were back to normal.

I am very pleased I did the trial as I had a very good quality of life whilst on it - working, travelling, socialising etc.

Good luck to you. I am currently on another trial (Genmab 701) and am at the Matsden at the moment. I am here every Tuesday. What day will you have your treatment?

Best wishes

Sharon

gina profile image
gina

Thank you so much Sharon for all the info . I am most grateful and it has made me feel much better.

I hope to start on Monday 15th Feb . I will be staying in for 3 nights for the blood tests

so should be there on Tues 16th .If you are there then I would love to meet you.

I wish you all the luck in the world with the new trial. I do feel the Marsden is one of the best places to be .

Regards Georgie

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