Hello everyone. Some of you may recall that I was active on here a couple of years back. It is with a heavy heart that I return (although I'm grateful that I am able to return to somewhere). My mum was diagnosed with stage IIIc carcinosarcoma two and half a years ago. She has been in remission and doing wonderfully for over two years now, after her surgery in October 2013. Sadly her latest CA125 was elevated to 180, and following a PET/CT scan, we’ve now discovered that the cancer is back. I don’t quite understand the results as I’m trying to interpret them myself (we’re still in the process of booking appointments with oncologists) but there’s definitely a large FDG avid mass on the peritoneum, and possibly something on the spleen.
There was also something about increased FDG uptake by muscles around left shoulder. I have absolutely no idea what that means.
I realise that this is a little preemptive and perhaps I should wait until we actually speak to her oncologist, but I'm going crazy, and just need to air it out.
I refuse to do what I did last time, which is google things, because I ended up scaring myself and everyone around me for no reason at all. When she was first diagnosed, the ladies on here were so helpful. You all got me through the experience - and when I told my mum I'd spoken to incredibly strong women who had her exact same cancer, I could see immediately that it made a huge difference. So I think I just really need to hear stories of similar experiences, some advice from someone who's been through something similar and what you think the next best steps are. I do still read posts on here and am always incredibly overwhelmed and impressed by the ladies who've had cancer come back once, twice, three times, and they continue to fight and beat it. I just want to know that she can fight and beat this one. Recurrence doesn't necessarily mean it's the end right? We just keep fighting?
I personally feel completely numb. I don’t know what this means but it’s like my brain refuses to process it. All I can think is "it's okay, she'll fight and beat it" and it's like there's a wall in my brain beyond that. I can't get past that thought. I think we all knew we were likely to be back here again. I was just so hopeful that we wouldn't. I really didn't want us to be back here again. She was doing so well.
Sorry, I will end my rambling now. Thanks so much for reading. x