Dear online community
I have just been filmed by Sky News (as exhibit A, cancer patient, human interest) about some ovarian cancer research that will be published in the Lancet tomorrow. I can't say more because it is embargoed but this may be quite a big story. Do pass on the findings to your friends for whom it may be relevant.
I also took part in a focus group for the Eve Appeal. They are now looking for more people. I've pasted part of their letter to me. I do encourage you to participate. Eve is looking at various ways to support women and in particular to improve early diagnosis. One of the things they are considering is a help line which I think would be great. Our group also pointed out that many women feel very isolated and more could be done to help people to meet others and share experiences - as we do here.
See extract from their letter:
We would like to conduct some additional research with women experiencing gynaecological cancer to explore the journey from symptom to diagnosis to treatment and wonder whether you know anyone who would be willing to talk to us? Discussions will take the form of short, telephone interviews with individuals at a time that suits them. Ella and Ellen from The Ladder Consultancy will be conducting the interviews. Interviews are expected to last around 30 minutes.
We would be most grateful if you could speak to anyone you know, or forward them this email, to see if they would be interested in taking part. If they are, please ask them to contact Ellen directly at firstname.lastname@example.org or by phone on 07932 670992.
Thank you in advance for any help you can give us.
The Eve Appeal
Perhaps if you do contact them, you might mention that you heard about them via this forum as I said in the focus group that communities like this are helpful!
And finally, very warm best wishes to all on this site for 2015. I wish you as much health as possible and certainly happiness. Liz x